June 1975
Campaign for the Mentally Handicapped's "participation weekend"
at Castle Priory College. This was reported by Alan Tyne, Paul Williams and
Tim Gauntlett
in Working out: an account of CMH's participation weekend at Castle
Priory College in June, 1975, with some comments published London by
CMH, 96 Portland Place, W1N 4EX in 1975.
31.10.1975 and 1.11.1975
Mind
conference at Church House, Westminster in
connection with the publication of volume one of Larry Gostin's
A Human Condition. The Mental Health Act from 1959 to 1975.
Observations, analysis and proposals for reform.
Heavy Daze number 6: "Mental Patients Union - A federation of Mental
Patients group[s] around the country, based on the ideas that mental
patients
organise and support each other and fight for the rights of each other. The
National Info. Centre has recently moved out of London (a good sign?) to
Hull MPU, 16 Clifton Gardens, St Georges Road, Hull, HU3 3QB. Write to them
for their list of contacts across the country. East London MPU, 37 Mayola
Road, E5 (page 31). The same issue includes (page 28) "Society, Psychiatry
and the MPU - Personal responsibility? My View", by "Mike Smith, Hull MPU"
and a notice about the Directory of the Side Effects of Psychiatric
Drugs.
December 1975 Mind Out "Voluntary patient - involuntary
treatment" (A personal account by Andrew Roberts)
20.12.1975 Angela Sweeney born. See
2001 -
2.6.2003 -
Recovery In Sight Centre 2009 -
This is Survivor Research 2009
1976
1976
Peter Thompson founded The Matthew Trust
1.1.1976 Which? Books Understanding Mental Health
11.1.1976 About half the patients at Paddington Day Hospital signed
a letter of complaint, leading to an inquiry and (eventually, in 1979) the
closure of the unit.
13.2.1976 The telephone number used by the Mental Patients Union
moved with Andrew and Valerie (Argent) Roberts to a house they later shared
with
Joan Hughes.
29.3.1976/30.3.1976? Janet Cresswell stayed overnight with
Joan Hughes
at 37 Mayola Road. The following day, Janet stabbed Desmond McNeil,
her former doctor, in the buttocks. Joan wrote (about 1993):
"This news devastated me, but I had no time to dwell on it as I
had to continue to occupy Mayola Road until a house had been obtained for
Matthew O'Hara and others. I had to stay until the official eviction took
place. In the meantime Matthew O'Hara, an amateur expert in legal matters,
tried to help Janet, but she refused his offer of help. To this day Janet
has remained a patient in Broadmoor Hospital."
30.1.1976 150 squatters evicted by 100s of police from Hornsey Rise,
GLC Estate, Hazelville Road: (Welby House, Goldie House, Ritchie House).
Cherry Allfree was,
at one time, a squatter in Welby House.
Sunday 25.4.1976.
Joan Hughes' diary entry that Mayola Road closed:
"All the troubles with Mayola Road appear to be over. The
place is empty now and bath and toilet have been smashed up by demolition
men, awaiting the destruction of the entire building."
Wednesday 28.4.1976 - 7.30pm Question put to the leader of Hackney
Council by Councillor Lois Jacques "Will the Leader please state what
policy decision has been taken regarding the request from the Mental
Patients' Union for property to be provided by the Council for their use?"
- Minutes in Joan
Hughes' collection)
Spring 1976 "Spring is Rising" by
Frank Bangay. This was published in Springfield Words, a
magazine produced by
Springfield Hospital in 1978. Frank's 1985 poem "Food and
Shelter" (Naked Songs and
Rhythms of Hope pages 104-106) relates to experiences in
1976 to 1978 and "the revolving door system that we can get caught up in
once we enter the psychiatric system".
June 1976:
PROMPT: Protection of the Rights of Mental Patients
in Therapy - Became
CAPO (Campaign Against Psychiatric
Oppression) in
March 1985.
1977
Peter Barham's thesis,
Thinking
about schizophrenia, thinking about schizophrenic thinking and
schizophrenic thinking was awarded a Ph.D. by the University
of Durham in 1977. It drew on his
Winterton interviews and led to
schizophrenia and
human value in 1984.
1977 National "Women and Mental Health Conference", London. "as far
back as the late 1970s, whilst working as a trainee social worker, I helped
to plan the first and only National Women and Mental Health Conference, in
the hope that crisis provision and better support services could begin to
be set up for women who feature more heavily in the psychiatric system"
(Helen Shoenberg, 12.4.1994 Conference speech) -
chronology
February 1977
Larry Gostin's
A Human Condition. The Law Relating to Mentally Abnormal Offenders:
Observations, analysis and proposals for reform, the second volume of
A Human Condition, published by
Mind.
January/February 1977 Mind Out "World leader meets his match
- John Hooper says that sometimes, the compulsory powers of the Mental
Health Act can be a blessing in disguise" (A patient's personal account)
October 1977 Joan Hughes re-isued A Directory of the Side Effects
of Psychiatric Drugs. Duplicated at Centerprise.
Autumn 1977/Spring 1978 Hackney Worker's Educational Association
course on "Mental Health and the Community" at Centerprise, in Dalston. It
grew out of discussions at Centerprise about how to cope with customers
with mental health problems. For the ex-Hackney MPU members who ran it, it
grew out of a desire to create a dialogue between people of divergent
views. The principle was that people could talk without agreeing and
without compromising the purity of their respective principles.
Psychiatrists, for example, could debate with anti-psychiatrists, and
mental patients talk to mental health workers, on equal terms.
Between the autumn of 1977 and the autumn of 1984, Hackney Workers
Educational Association was involved in meetings on alternatives to prisons
(with
Alan Leader) - the
local psychiatric unit - mental handicap (and the formation of
Hamhp) -
alternatives in mental health -
mental distress in old age and a series of meetings with
speakers who had physical or communication disabilities (Everybody's
Hackney). Ex Mental Patients Union members were active in all of these.
6.12.1977 Meeting arranged for this date when Manchester
Mental Patients Union would show a Panorama programme about mental illness
to patients.
1978
1978 On Our Own.
Patient-Controlled Alternatives to the Mental Health System
by Judi Chamberlin
(born New York 1944 - see American index). Judi visited London,
Holland and Iceland
in
1982 - See
1981/1982 -
Summer1982 -
July 1985 -
Barker and Peck
1987 - Her book inspired
Mary O'Hagan in New Zealand -
1997: Anny
Brackx prepares to publish a
British edition
1988 -
Summer 1990
(history) -
Elsinore 1994 -
Hearing Voices
1996 -
National Empowerment Center (1997?) -
Coercice Treatment Conference 2007
- 2009
1978 Brian Davey (Nottingham) first experienced psychosis or non-
ordinary state of mind. See
Nottingham Advocacy Group -
10.9.1988 -
Asylum April 1989
-
Asylum Winter
1990/1991 -
Asylum Spring 1991
-
Asylum Autumn 1991 -
Asylum Winter 1991/1992 -
Asylum Autumn
1993 - Ecoworks
October 1978 North West Mind established with the appointment
of
David Brandon
as North West Campaigns Officer with offices in Blackburn
and
Liverpool. [Later combined at Preston]. Mind
already had regional bases in Cardiff, Leeds, Gateshead and Sheffield.
Mentions sixteen "active local associations for mental health in the area".
David to mobilise concerns of "mental health volunteers and professional
workers". (Mind Information Bulletin No.36. October 1978)
See
Manchester Mind -
North West Schizophrenia Fellowship -
October 1981 -
early 1980s? -
1985 -
Lindsey Dyer
-
1987.
The North West Mind regional council brought together individuals
from local associations across the region. About 1986, Irene Harris and
Andrew Hughes, "two of the more active recipients of mental
health services" became chairperson and vice-chairperson. (email Andrew
Hughes 17.4.2010) - 1988;
North West Mind Consumer Network
|
About here that
Manchester Mental Patients Union published Your Rights
in Mental Hospital - A Mental Patients' Union (MPU) Pamphlet.
The contacts list includes "Crisis Centre" 437-4594" - "Anorexic Aid: Mrs
P. Hartley, 1 Pool End Cl. Macclesfield, SK10 2LD"- "MIND 226-2623" -
"Phobic Society 881-1937" - "
PNP (people not psychiatry) 226-8089" "MPU
Address: We are trying to set up a houses, but until then contact c/o Grass
Roots Bookshop, 109 Oxford Rd., Manchester MI. Telephone 236-3112"
"
Mind in Manchester was set up in 1979 by a group
of people
who had experienced mental ill-health and the damaging consequences of
medical diagnosis and treatment at the time"
(history on its website)
Manchester Mind Newsheet (four times a year) probably
started in the autumn of 1984 - Members of Manchester Mind
made a presentation to the 1985
(national) Mind
conference. See 1986.
Mind Manchester Group wrote
Developing an Alternative
Community Mental
Health Service in 1988. This mentions three "innovative"
Manchester projects with a non-medical approach:
42nd Street -
People not Psychiatry - Commonplace
12.1.2010 First
archive of Mind in
Manchester's website. Archive goes to 24.8.2008.
March 2010: Following noticed
on website: "Following a difficult process, the members of Mind
in Manchester have taken the decision to close the organisation with
immediate effect. The reasons for this include not being able to secure
enough funding to sustain the organisation. - We would like to take the
opportunity to thank all our partners and associates who have worked with
us over the last 30 years to enable us to deliver innovative mental health
services for the people of Manchester."
|
1979
Frank Bangay wrote the lyrics "Pretty Girl" to a song performed
by the Fighting Pigeons
Half The Sky: An Introduction to Women's Studies
edited by the
Bristol Women's Studies Group. London: Virago, 1979. Chapter on "Bodies and
Minds" has excerpts on "Women and Mental Health" with a review (pages 95-
96) of Phyllis Chesler's
Women and Madness (1972) and excerpts from Anne
Karpf (1978) on 'depression' and Cathy Haw and Rosie Parker (1977) on
feminist psychotherapy from
Spare Rib.
3.5.1979 Conservatives won the General Election in the
United Kingdom - Market choice and consumerism became positive themes and
state welfare was suspicious - The Conservative manifesto said
"We must do more to help people to help themselves, and
families to look after their own. We must also encourage the voluntary
movement and self-help groups working in partnership with the statutory
services."
|
From May 1979, the mental patients' movement in the United Kingdom
developed in a radically different political climate. This was not only due
to the change of government, but also to new attitudes to mental patients
amongst local authorities, voluntary groups and others attempting to defend
alternative political views or threatened services. The patient as
consumer who should be listened to took a decade to enter government policy
(Griffiths Report 1989). In the meantime, our language had
changed. We were no longer
mental patients uniting, but
survivors or
users
engaged in a
diversity of
speaking out -
advocacy and
user involvement. Half way through the decade, mental health
users began to think
about being
empowered.
People First, the movement of people with a learning difficulty,
developed a strong autonomous existence in the United Kingdom (see
1982 and
1990)
and the survivors' movement, unlike
mental patients union (see
MPU Declaration and
Mind Out 2),
developed separately. Attention to
mental distress in old age involved an alliance of patients,
carers and professionals.
|
November 1979 - 42nd Street founded
in
Manchester. A community mental health project
for
young people aged between 15-25 years, living in Manchester. [An old
website said it was founded in 1980]. In 1983 published Reflected images
Self portraits of distress: "eleven people describe their experiences
of stress and their search for understanding and support - 42nd Street, a
Youth Development Trust project", Manchester: Youth Development Trust.
96 pages. By 1986 it was funded
by the Urban Aid Programme. Published Principles into Practice. A
developmental study of a community health service. (Aileen McDermott
1986). Tried, with limited
success, to make its management structure accessible to young people in the
belief that consumers of a service, should, if they wish to, participate in
the decision making process.
Helen Spandler was based ther as a research worker from August
1994 to August 1995. The report on her research
Who's Hurting Who? Young people, self-harm and suicide
was published in
1996. 2000: Bernard Davies StreetCred?: Values and
dilemmas
of mental health work with young people. Leicester: Youth Work Press.
Published in association with 42nd Street. 2006 In and Out of Harm's
Way by "Alex". Manchester: 42nd Street. 15 pages.
Its website
says: provides support service to
young people experiencing stress and mental health problems.
|
November 1979
Lawletter Quarterly magazine published by John Bagge,
then at 90 Fawcett Estate, Clapton Common, London E5 9AX, from 1979
to
1983 (17 issues).
|
1980
|
February 1980 The
National Schizophrenia Fellowship appointed a group development
officer (David Lynes?) for the North West based in Warrington
The North West Schizophrenia Fellowship split from the
National Schizophrenia Fellowship (NSF) in 1982, although the
NSF also continued to operate in some parts of North West England too.
I seem to recall that David Lynes was the 'boss' at North West Fellowship
and was a very energetic figure. I think there was considerable competition
between the Fellowship, based in Warrington, and
North West Mind,
based in Preston. I went to a meeting of the Oldham group of the NSF. It
was difficult to sit through, as it was a carer support group. People
present spent the evening comparing notes on the difficulties caused them
by their relatives with a diagnosis of schizophrenia. I do not think they
considered that the new member might have a diagnosis of his own. Ouch!
Eventually Mind and the Fellowship did find a way to collaborate and then
formed a quite considerable alliance." (email
Andrew Hughes 1.8.2009)
|
Thursday 26.6.1980:
Matthew O'Hara found dead in an "MPU" house - house closed. This
was really the end of the Hackney Mental Patients Union housing. Surviving
members of Hackney MPU negotiated re-housing for the remaining tenants. The
Matthew O'Hara Committee: for Civil Liberties and
Community Care was founded in August 1981. Much of its
educational work was carried on through the
Hackney Workers Educational Association, continuing activities
that Matthew had been involved in.
Saturday 23.8.1980
PROMPT Conference on Anti-Psychiatry at Conway Hall
1981
23.3.1981 Official launch of CHAMH (City and Hackney Association for
Mental Health) - Later City and Hackney Mind. The association had
been
formed in 1980 with administrative help from the Community Psychiatric
Research Unit and under the chairmanship of Dennis Timms, chair of
City and Hackney Community Health Council. User involvement was
slow to be established. "Dr David Kessel" (a mental patient) was elected to
the executive on 12.7.1982. Meetings were open to members, and Valerie
Argent, Joan Hughes and Andrew Roberts were amongst those who attended.
11.4.1981 Third meeting of "State Brutality Group" changes its name
to Inquest (United Campaigns for Justice) The members of the group
at this time were groups respecting Blair Peach, Mathew O'Hara, Jimmy Kelly
and Richard Campbell. -
[External link to Inquest website]
29.4.1981 Start of "Mental Hospitals - Prisons - and Community
Alternatives - A Hackney WEA and Matthew O'Hara Committee Class" at
Centerprise. Case study one: The Death of Richard 'Cartoon' Campbell
20.5.1981 "The Social Worker's Dilemma"
28.5.1981 "Community Aternatives to Mental Hospitals"
17.6.1981 "Community Aternatives to Prisons"
Madness Network News Vol.6 No.2 Winter 1981 Page one:
The European Movement from an ex-inmate perspective, by Swan, an
American activist travelling in Europe.
Madness Network News
Vol.6 No.3 Summer 1981 Starting page 12: European Convention on Human
Rights and An Evening with Frits Winterwerp, by Swan.
Madness Network News Vol.6 No.4 Winter 1981-1982
Page 8: NAPA Pickets Shock Shop, Berkeley, California, by Anne Boldt
and Disabled Hold Law Conference, Toronto, Canada, by
Judi Chamberlin.
Starting page 10: The European Movement, by Swan
includes
PROMPT, Inquest,
Matthew O'Hara Committee and
Hackney Mental Patients' Association
Page 16: "Democratic" Psychiatry in Italy by Swan
May 1981 Mind Out "Consumers' issue"
about June 1981:
The Advocacy Alliance set up.
July 1981 Riots. Atmosphere of fear and tension in Hackney.
Summer 1981
Matthew O'Hara Committee News
October 1981
David Brandon
Voices of Experience. Consumer
Perspectives of Psychiatric Treatment. North West Mind, Miller
House,
Miller Arcade, Preston, Lancashire. 36 page pamphlet. Thurstine Basset's
collection
|
25.10.1981 to 31.10.1981 Scottish Mental Health Week.
LINK announced the opening and successful development in Glasgow
of the Mental
Health Resource Centre,
LINK social clubs and the new LINK Social and
Activity Centre (to open in December)
|
October 1981 Sylvia Jeffares died in a road accident. Sylvia had
corresponded with and visited and Janet Cresswell throughout 1981 and wanted to
campaign in some way around her situation.
Joan Hughes inserted the following notice in the Morning
Star for 1.12.1981:
"JEFFARES, Sylvia. Died suddenly in October 1981, aged 32.
Courageous fighter for women's liberation and for human rights for all
prisoners. Remembered as dear friend and comrade - Joan."
Saturday 7.11.1981. Inaugoration of Hackney Mental Patient's
Association in the basement of Centerprise.
Dave Kessel in the chair.
Everybody sat in a large circle and said what they thought - in turn. See
below 9.4.1982 -
July 1982. See also
Hackney Union of Mental Patients, which was, in some ways, a
continuation, and
Hackney Mental Health Action Group (which
included a radical social worker).
November 1981 Tony Smythe resigned as Director of Mind.
Lindsay
Knight, editor of Mind Out, left to prepare programmes for
Channel 4 in January 1982. Mind Out closed down in
February 1982. Chris
Heginbotham became National Director of Mind sometime in 1982, and
remained
until 1988. During that time he "was an active member of the
World Federation for Mental Health" and
secured its congress for Brighton in 1985.
Barbara Poole was conference administrator from 1983.
Larry Gostin (Legal
Director) remained until 1983, when he left to run the National Council for
Civil Liberties. - Apart from the
May 1981 consumer issue, it is difficult to find any indication
of patients voices in Mind Out at this period. The periods that
Mind publications gave mental patients a platform are the
mid 1970s (under Denise Wynne) and
after 1982.
1982:
|
1982 saw the publication of the first major UK history of the mental
patients' movement, by Peter Sedgwick, and of Dale Peterson's collection of
historic accounts of madness by those who experienced it from the inside.
The movement also gained a new name as the USA concept of "self-advocacy"
and the older concept of "citizen advocacy" were popularised in the United
Kingdom by CMH The Campaign for Mentally Handicapped People. Judi
Chamberlin visited patient activists in Hackney and elsewhere and
The British Network of Alternatives to Psychiatry was conceived in
Brussels. Patients prepared criticism of the parts of new Mental Health
Bill that seemed to undermine voluntary treatment and Mind's
financial
crisis saw the closure of Mind Out and the end of MIND
Information Bulletin in the form we knew it.
|
Peter Sedgwick's
Psychopolitics (1982) has two parts: Part One is a
critical review of anti-psychiatry. Part Two, "Psychiatry and Liberation"
is a thoughtful review of "Mental Health Movements and Issues: A Survey and
Prospect" including a positive review of "movements among the mentally ill"
in the United States, Germany, France, Holland, Belgium, Scotland and
England. Sedgwick comments that "The continental patient-groups have found
particular inspirations in the work of the Mental Patients' Union in
Britain"
1982 Commonplace established by
Manchester Mind. See
Manchester index
1982 Missing Link collective formed by women housing workers
in Bristol to provide woman-only "intermediate second stage accommodation
for single homeless women of all ages". Awarded Urban Aid for five years in
April 1983 and appointed four full time workers in June 1983. By 1986 it
had five communal houses in different parts of Bristol. "Most of the women
we house come from a background of institutional care, Some have left home
or a broken relationship; others are going through a crisis in their
lives".
(Finding Our Own Solutions 1986 pages 15-16).
See
present website.
Thursday 7.1.1982
Hackney Action on Mental Handicap (HAMHP) formed. It included
articulate local people with a mental handicap and organised its meetings
so that they participated in discussions.
About 1982? "Society for the Advancement of Research into Anorexia,
(SARA)" founded by Clare Ockwell and her mother. Clare had herself been
anorexic and used mental health services on and off since the age of nine.
She ran the society for ten years before seeing through its merger with the
Eating Disorders Association in
1992. Clare helped to found
CAPITAL in 1997. On
1.9.2007 she came fourth, with 28 points, in the last edition of
MasterMind. Her specialist subjects were anorexia nervosa, the Duncton
novels and the rock group Genesis.
14.1.1982 The New English Mental Health Bill A
Lawletter
Special Leaflet
16.1.1982:
A report of a PROMPT meeting
February 1982 Final issue of
Mind Out. Mind stopped it on
financial grounds, after " run of
nine years and 58 magazines". It was replaced by
OpenMind in the spring of 1983.
March 1982: Hackney Workers Educational Association "Alternatives in
Mental Health" meeting in a series
of "Alternatives" meetings organised by Sheila Rowbotham. Doug Tilbury,
Andrew and Valerie Roberts led this one. After the meeting someone spoke
about the idea of a course on psycho-geriatrics - This led to the Mental
Distress in Old Age course.
Tuesday 9.4.1982 Brent Community Health Council Public Meeting on
Mental Health
"Under Pressure - racism - no money - loneliness - inadequate
housing and transport - unemployment - fuel bill - too few nursery places -
stress - If you can't cope with the pressures in your life should you be
labelled mentally ill?""
.
Andrew Roberts prepared a talk on
"
Community
Approaches to Mental Distress and Insanity"
which concluded with "some of
the things that groups have done to help themselves" - Including relatives
groups
(National Schizophrenia Fellowship mentioned), the Mental
Patients
Union,
Hackney Mental Patients Association, "a self-help group that
runs a
regular weekly social in a local day hospital and is campaigning for a
patients controlled social centre" and classes run through the Workers
Educational Association.
May 1982 A meeting in Brussels of the The International Network Of
Alternatives To Psychiatry
(Resseau Alternatif A La Psychiatrie) which led to the
formation of the
The British Network of Alternatives to Psychiatry
(external link -
archive). The British Network was
started by
Stephen Ticktin. - See
Mind November 1985
July 1982
Valerie Argent (Roberts) elected to the City and Hackney
Community Health Council on the nomination of
Hackney Mental Patients Association -
Hackney Workers Educational Association
- the
Matthew O'Hara
Committee
July-August 1982
Judi Chamberlin
visited London (staying with
MPU members), before travelling to Holland to
meet Dutch activists. She was following in the footsteps of her friend Ann
Boldt (Swan), who had frequently reported on the United Kingdom and
European movement in
Madness Network News. Judi then went on to
Iceland. She returned to the United Kingdom in 1985 as a speaker at the
World Congress of Mental Health
Summer 1982 Mixed
Emotions: A Collection of Angry and Peaceful Poetry
August 1982
Frank Bangay's Seeing and Knowing, a poem that was
pubished in What They
Teach in Song
Saturday 11.9.1982 The Annual General Meeting of
CMH The Campaign for Mentally Handicapped People, in London, was
devoted almost entirely to "Discussion of Self-Advocacy and the role for
CMH in this movement" (Invitation letter from Morag Plank July 1982).
We Can Speak for Ourselves. Self-Advocacy by Mentally
Handicapped
People, by Paul Williams and Bonnie Shoultz, published in
The USA earlier in the year, was available at this meeting. [See
advocacy]
|
October 1982
Frank Bangay's Solidarity Poster. This was sold as A4
photocopied sheets. It has been sold and given a way in various formats
since. The last stanza is
"We cried together last night, but our tears were in
solidarity with the sadness in the world,
and through our solidarity through our tears we
found strength"
Another image and words leaflet self-published at this time was "Woman on a
Park Bench with Birds"
|
Tuesday 2.11.1982 Launch of Channel 4 (UK Television) to cater for
minority interests not met by the mainstream channels.
A demonstration video,
Psychiatric
Oppression, was produced to make the case to Channel 4 for a
programme. This led, eventually, to
We're Not Mad We're
Angry
November 1982 Eighth World Congress of the International League
of Societies for Persons with Mental Handicap, held in Nairobi, was the
first to fully involve people with mental handicaps. Thirty participants
with mental handicaps came from Canada, England, France, Gaza, Germany,
Kenya, Norway, Sweden and the USA. They spoke seven languages. They held
their own discussions on the way they wanted to live, but made a
presentation to the plenary session and made recommendations to the closing
session. (CMH Newsletter 3, Spring 1983, pages 7-8)
1983
1983 to 1985 Liz Sayce studying at Royal Holloway, University
of London. See
1988 -
1990 - 2000
1983 Ted Curtis born
1983 The Manic Depression Fellowshp started. (Later MDF The BiPolar
Organisation -
Link to website - See
Perspectives on
Manic Depression 1996 -
On Our Own Terms 1997 -
Strategies for Living 1997 -
Meeting of Survivor Groups 2.3.2000 -
web archive started September 2000 -
The
British Network of Alternatives to Psychiatry ran from
1983
to 1988 (dates given by Stephen Ticktin in
Asylum Summer
1991). Speaking of the importance of the British Network
(May 2008), Peter
Campbell said it "brought radical survivors and radical
professionals together."
Stephen Ticktin Asylum Summer
describes himself as one of the founders and says "it was a loose
affiliation of users and mental health workers who met on a monthly basis
for purposes of both consciousness raising and campaigning. A number of
working parties formed around particular issues such as the law, women,
ECT, and major tranquillisers. In addition several study days were held ...
one on the
Closure of the Mental Hospitals, in 1985, and another
on ECT and major tranquillisers, in 1987"
Peter Campbell said
(May
2008) that it included forceful characters
like
Shulamit Ramon and
David Hill, who had both
recently completed their Ph.D. theses (Shulamit in
1972). David was very important because of his trade
union and political links. He got users into the Houses
of Parliament and into conferences in Chesterfield
organised around Tony Benn. These links were lost
after David left.
8.2.1983 Royal Assent to the
1983 Representation of the People Act. The possibility of staff
organising mental patients to vote worried those members of parliament
whose constituencies contained large mental hospitals. This fear was
assuaged by requiring registration from one's previous address. The
movement towards enfranchising long-stay mental patients must have had some
effect on the willingness of policy makers to listen to patients.
February/March 1983 First edition of OpenMind
[See
index], the
replacement for
Mind Out. It was launched and edited by Anny
Brackx who, at this time, had been a journalist for about nine years. It
was redesigned and relaunched in
1997 under the editorship of
Sara Dunn (now described as Executive Editor). Kathryn Perry
became editor in
2002.
Closed
April 2010
It
was during 1983 that Barbara Poole became
administrator in
Mind's conference office, which, I think, was part
of the Training and Education Department (Tessa Jowell head). The tutors
were Corrine Brewer, Charles Patmore, Chris Borne, then Auborn Wiseman.
Peter Campbell has suggested that much of the rapid change in Mind
with respect to user participation was due to the tutors' interest in this.
March 1983 to August 1983 Coventry Crisis Intervention Team initial
six months. [It was continued]. There was a "Follow Up Consumer Survey - 1
month after the closure of our research cases". - The "first fifty
consumers" were asked to
"share their views of the service they had been offered"
(Ann Davis, December
1988) - "After feedback from the Consumer Research" the length
of time clients could be seen for was increased from 6-8 to 10-12 weeks.
[March 1984 report from S.M. Newton, Project Leader]
- Featured in Speaking
from
Experience (1985).
9.5.1983 Royal Assent to the
1983 Mental Health Act (England and Wales)
June/July 1983 Ron Lacey,
in Open Mind claims that mental patients in France, Italy
and Holland have organised lobbies. Contrasts unfavourably with England. -
Also a letter form Peter Campbell.
August/September 1983 Peter Cambell
in Open Mind
8.9.1983 Peter Sedgwick found dead near his home in Shipley, York
September 1983 - November 1985
Mental Distress in Old Age (Hackney)
September 1983,
Peter Campbell moved to Cricklewood [33 Lichfield Road, London,
NW2"] and became
involved in
Camden Mind as a "volunteer" almost at once.
David Hill was not the
director at Mind in
Camden at that time.
"The material for the
"Psychiatric Oppression" video was shot
over a period of time (after Autumn 1983 as my bit was shot in my flat in
Cricklewood) and was
preparatory to
We're Not Mad We're Angry, but when it was actually edited
together into the video I am not quite sure" (Peter Campbell)
Monday 24.10.1983 Chamh Annual General Meeting at Shoreditch Health
Centre. Amongst those nominated and seconded for the executive were a
number of patient activists who were taking a leading role in suggesting
resolutions to organisational problems associated with the way Chamh had
been generated within the system (Community Psychiatric Unit) and did not
have complete control of its own affairs. Those elected included
David Kessel and Valerie (Argent) Roberts. Also active at the
meeting were John Wilson,
Andrew Roberts and
Joan Hughes. The
patient reformers brought in Felicity Tregear (not a patient) to attempt to
sort out Chamh's finances.
November? 1983
Annual Conference
of Mind. Members of Glasgow
Link Clubs attended and were somewhat amazed
and angry that none of the presentations, seminars or workshops were
presented by patients. They made
their own presentation in
1984.
December/January 1983/1984 Peter Cambell
in Open Mind "Open Mind seems to be heavily weighted in
favour of the expert".
1984
Mental Health Services Project, Chesterfield
Tontine Road Centre
North Derbyshire Mental Health Services Project
Contact Support Group
A. Milroy and Rick Hennelly prepared a background paper "Exploiting
Infinity" for the Mind Annual Conference in
September 1984 and
another, "Changing our Ways", for the Mind Annual Conference in
November 1985. Both
published by "Mental Health Services Project, Chesterfield".
Rick Hennelly (1988), page 210, refers to these as "earlier
descriptions of the service and the tensions between ideology and practice"
From beside the Chesterfield Community Centre in Tontine Road
one can look up at the famous bent spire. The centre houses a large number
of projects, one of which was a North Derbyshire Mental Health Services day
centre for people becoming reestablished in the community. In the
mid-1980s this became run on increasingly democratic lines and was known as
the Contact Support Group [first half of 1985] - Ivy Buckland from
the centre was the
first
Survivors Speak Out Treasurer. Rick Hennelly, a social worker
at the centre was very active in the formation of
Survivors Speak Out
|
|
"The Education and Action Group - a group of ex-mental patients...
met in 1984 to produce a tape and slide show based on their experience of
mental illness and recovery entitled
Life After Mental Illness (see Inside Out Issue
6)"
(Christine Cowan Inside Out Issue 8, p.5) - Presented
MIND 1984 - Grimsby 11.4.1985.
|
|
Camden Mental Health Consortium (CMHC), possibly not with
that name, was founded in 1984. in response to the planned closure of
Friern.
(Campbell, P. 1987)
1985?
Diana Rose "became part of the fledgling service
user/survivor movement in the UK" by joining Camden Consortium. See
2000 paper.
The first Draft Constitution for Consortium is
dated 1985, before the MIND conference. It contains no provision for users
to be the only members, or a special, full category of member but refers to
promoting a 'strong consumer voice'. (
Rose, D. 2000).
Survivors Speak Out: See
summer 1986 Asylum) -
"Don't ask me why people in Survivors Speak Out should live in Camden"
(
Rose, D. 2000)
Before September 1987?
Campbell, P.
1987 "Giants and Goblins. A Description of Camden Consortium's
Campaign to Change Statutory Plans" -
Peter Campbell was
"Public Relations Officer of Camden Consortium and secretary of Survivos'
Speak Out. - Camden Mental Health Consortium's address was c/o Emma Baatz,
8 Burgess Hill, London, NW2 2WA
The group remained active
until 2009, describing itself as "the largest User Group in
the London Borough of Camden. Its members are people who use or have used
the Mental Health services and live or work in the Borough. Associate
Members are people or organisations who for some reason have an interest in
the Mental Health Services provided in the Borough and support the
objectives of CMHC. Membership is free."
Closed 29.3.2009
|
1984 Peter
Barham's
Schizophrenia and Human Value (based on
his thesis)
published.
1984 Anne Rogers graduated from the Polytechnic of Central London.
She took her M.Sc at Bedford College. "Subsequently I gained employment as
a research officer in the Legal Department of National Mind, exploring the
implementation of Section 136 of the Mental Health Act and became
interested in a broad range of mental health issues including civil
commiment, coercion, drug treatments and user involvement".
(external link) -
1987 -
literature -
1991 -
1993 -
1993 -
Wednesday 9.5.1984 C. Heginbotham and Chris Shaw from
Mind
questioned by
Social Services Committee. No mention of consumer's voice. Miss
Shaw spoke about
"
annual conferences directed towards a very large
professional audience with topical themes each year, for example
the forthcoming one is going to be on the whole range of after
care and is
there life after mental illness and the rehabilitation services which are
available" (SSC 1985
volume 2, page 142).
Wednesday 16.5.1984 Alison Wertheimer, Tom McLean and Derek Thomas
from
Campaign for Mentally Handicapped People
questioned by
Social Services Committee. The memorandum submitted by the group
contained recommendations (SSC
1985
volume 2, pages 190-191), including
1) All policy-making and planning ... should take the principle of
normalisation as the starting point
2) Consumer involvement Far greater consumer involvement is needed
at all levels of service planning, management and delivery. The consumer is
primarily the person with mental handicap although some people may also
need or wish others (families, friends) to advocate on their behalf. We
should like to see much greater support for the growing self-advocacy
movement in this country."
Wednesday 25.5.1984:
mental handicap schemes
are on the move ... mental illness schemes remain ... stuck in the ...
tramlines
Summer 1984
Hackney Mental Health Action Group formed "by local patients,
ex-patients and other people".
Doug Tilbury, a
Hackney Social Worker who had been a friend of Hackney Mental Patients
Union, was a key person in this group. Apart from Doug, the activists I
remember were patients: Including Cathy Pelican -
Ian Ray-Todd -
Lisa Haywood -
Jim Read -
David Kessel - Jim
has suggested that the group was a spin-off from the Hackney
Day Hospital Patients Committee - But that does not fit the
sequence here.
Saturday 23.6.1984 Launch of
The Phoenix patients' publication at the "Conference on
Normality, Normalism and Mental Health" - alternatively billed as Phoenix
Cooperative Discussion on "Mental Health and Illness".
2pm-6pm Stoke Newington Community
Centre, Old Fire Station, Leswin Road, N16.
August 1984 Women and Mental Health group meeting in Hackney
1.8.1984 Following an overdose, Valerie (Argent) Roberts was admitted to Hackney
Hospital. Discarded poems were rescued from the waste paper bin. She was a
psychiatric inpatient until November, after which she was a day patient for
several years. This was a period of poetic and organisational creativity.
The organisational creativity may have been helped by her being a
Community Health Council member. - See
Hackney
Day Hospital Patients Committee
26.9.1984 The Guardian: "'The agony of tranquillity': Jim
Read and Kath Arnold, who both once took tranquillisers and now run groups
for users, cite Tamara's case to show the pitfalls of withdrawal and how to
cope with them". - See -
1.11.1984 -
28.1.1985 -
3.7.1985 -
16.7.1985 -
October/November1985 -
8.1.1988 -
October/November 1988 -
- 1996 employed on Open University
K257 -
2003: On Our
Own Terms -
1.11.1984 Community Care "Not so tranquil" by Kath Arnold and
Jim Read. It ends: "The Government recently announced life
sentences for heroin pushers. What is to be done about the entirely legal,
highly profitable and even more destructive trade in tranquillisers?"
22.10.1984 to 23.10.1984
Mind Annual Conference (Kensington
Town Hall). Theme "Life after Mental Illness? Opportunities in
an Age of
Unemployment" - Possibly the first
with a user presentation (By members of
Glasgow Link clubs) - Also
Chesterfield presentation. The conference notices mention three
"special features" this year:
- Greater opportunity for conference members to make their own
contribution to the conference.
- Particular attention to the potential of voluntary groups like MIND
associations.
- Listening to what former sufferers from mental illness say about what
really matters where life after mental illness is concerned.
end of 1984 Conference in
Wakefield, West Yorkshire, on plans to close the mental
hospitals. It "became apparent" that an open, democratic, forum for debate
about all mental health issues was needed and, out of this, the magazine
Asylum was conceived
1985
In the United Kingdom, the mid 1980s saw a revitalisation of locally
organised democratic organisations of mental patients, linked together in
networks. Support and funding for these developments from national
organisations, notable Mind, meant that the movement had the
potential to
grow and that some user/survivors could develop a career as advocates of
one kind or another.
Something exciting beginning to happen?
. The perception of dramatic national change, between
September 1983 and the summer of 1986, focused on
November 1985, was the subjective experience of
Peter Campbell,
moving from "isolation" to being "privileged at conferences". Peter
argued, in the summer of 1986, that his subjective experience mirrored "the
comparative rapidity of the consumer movement's advance out of obscurity"
( A View from the
Gatehouse, by Peter Campbell
Asylum Summer 1986, pages 8-9
|
For four years prior to 1989 (An
October 1989 Report) "the development team at
Good Practices in
Mental Health (GPMH)... focused on establishing district-wide
user-only
mental forums. Examples include the
Islington Forum, Lewisham Users Forum
and, most recently, Connections in Harrow"
Winter 1984/1985 - Hackney Day Hospital Patients Committee
established. [Note that in
February 1987,
Lisa Haywood
said this had existed for "2+ years"]. Those active in estabishing this
included (I believe)
Valerie (Argent) Roberts - Sheila Nash - Connie - Kathy (Cathy
Pelican?) and Sylvia.
Alan Leader joined sometime later.
1985
Alan Hartman went to Manchester. See
Manchester index.
|
Aware "formed in 1985 by a group of interested patients, relatives
and
mental health professionals, whose aims are to assist that section of the
population whoses lives are directly affected by depression".
(website)
|
January 1985
Frank Bangay's Stigma No.3, a poem that was published in
What They Teach in
Song - "You see, I believe in causing a fuss - at least we
can... make someone think".
28.1.1985 Social Work Today 'Fighting mad' by
Jim Read, who describes it as his "personal manifesto" and
comments that he "cannot imagine getting such an article into a
professional journal today". It ends "But what will also be required is a
challenge to the basic structures of our social, political and economic
system. Capitalism depends too much on turning love and happiness into rare
commodities. The change we want, the wresting back of control over our
lives, will come more readily if everyone recognises the part the mental
health system plays in keeping us all in place, and we challenge it at
every opportunity".
|
30.1.1985 Printing of the
Second Report from the Social Services Committee - 1984-1985 session - on
"Community Care with special reference to adult mentally ill and mentally
handicapped people". [Government response was Series: Cmnd.;
9674]
Consumer voice paragraph 31:
"...we have had difficulty in hearing the authentic voice of
the ultimate consumers of community care. There have been considerable
advances in techniques designed to enable and encourage mentally ill or
handicapped people to speak for themselves... But there is a long way to
go. Services are still mainly designed by providers and not users, whether
families or clients, and in response to blueprints rather than in answer to
demand. Matching the service to the consumer rather than vice versa should
be the one central aim of community care in the future. We recommend
that
all agencies responsible ensure that plans for services are devised with as
well as for mentally disabled people and their families"
Consumer view paragraph 148:
"Too little attention has been paid in the past to the views of
those most closely affected by the policy of community care - mentally ill
and mentally handicapped people and their families... Many of the less
severely disable are able to express their needs and wishes most
articulately, as the Committee saw and heard on visits. For those unable to
express their own wishes, some form of advocacy may be very helpful."
We recommend that the Department lay an obligation on authorities to
ascertain so far as practicable, and give due consideration to, the wishes
and feelings of mentally disabled individuals for whom a service is
provided, and in particular where closure of a long-stay facility is
contemplated. We also recommend that efforts be made to facilitate the
participation of individual mentally disabled people in the planning and
management of services
[Bold in original. In examining the report and the evidence, it is clear
that the impetus for the "consumer view" did not come from organisations
like
Mind, but
from organisations like Campaign for Mentally
Handicapped People, and from the Committee itself.]
|
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MIND Consumer Network (idea for)
|
"the idea of a Consumer Network has been around for some time and was in
fact presented to the policy committee in
January 1985. The idea was
endorsed by the Council of Management in
July 1985"
(Ballot 1 Autumn 1986) - See
30.11.1985 -
18.4.1986 -
Autumn 1986 - Summer
1987
March 1985
PROMPT changed its name to
CAPO
16.3.1985 British Network for
Alternatives to
Psychiatry Study day on Closure of the Mental Hospitals ("in
which we looked at the processes and objectives of current plans for the
closure of large psychiatric institutions.)
11.4.1985 Annual General Meeting of the Grimsby Cleethorpes and
District Local Association for Mental Health Presentation of
Life after Mental Illness
by the
Education and Action Group. In Inside Out Issue 8, p.5,
Christine Cowan) adds that the show will be presented at
Brighton in July. "Graham Kennedy, Christine Cowan and Thomas
Graham who appear on the slide show have been invited to participate in the
conference along with LINK/GAMH's Assistant Director, Jo Burns. All will be
taking an active role in the presentation and anticipate a lively audience
discussion afterwards. The... Congress... is a unique opportunity for users
of psychiatric services to air their views and be taken seriously. Money is
the real problem for financing the trip, and any donations would be greatly
appreciated. Please send to Education and Action Group, LINK/GAMH, 2
Queen's Crescent. Glasgow". It is not clear if they got to Brighton. Jo
Burns spoke on "New Approaches to Women and Mental health in Scotland".
Summer 1985 Family History Group at the Hackney Day Hospital
(Mondays). Members co-counselled for support. Each drew up a family chart
and a chronology of his or her life.
Valerie Argent's work has fed into
this chronology.
July 1985 British Network for
Alternatives to
Psychiatry paper "How would you plan a psychiatric service in
Britain, and for what end?"
July 1985
World Congress of Mental Health in Brighton.
Speaking from Experience - a video about user involvement
compiled and presented by
Thurstine Basset
Thurstine recalls that in 1985 there was very little interest in the
training video and in service user participation amongst the mental health
professions. This was "not on their agenda and if anything they were
opposed to the idea".
Barbara Poole, Mind's
conference organiser, was concerned that not enough service users would
come to the Patients to
People conference in November. To help, Thurstine phoned a day
centre in Brighton, which was known to be quite radical, and spoke to the
manager. He asked her if she could get together a group of staff and
service users to go to the conference. She was not keen and he thinks her
response "but we go to conferences to get a break from the clients" says a
lot about staff attitudes at the time.
The following is the text of a handwritten leaflet distributed at the
conference by some ex-patients from Holland:
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The Congress Mental Health 2000 is supporting injustice
by not rejecting 'expert' knowledge of psychiatrists
By calling human suffering illness the oppression is obscured.
Consumers are not mad, BUT ANGRY
By continuing the idea that you can talk for somebody else.
Make it possible for all consumers movements to come and to speak for
themselves.
The need to change all this will be really helped by:
- no 'generous' moneygiving to some consumers (the English
CAPO was
hidden away between the entrance and the elevator).
GIVE FREE ENTRANCE TO ALL CONSUMERS
and offer to share all their costs
- not only rational stilted talks but moveable emotional/warm meetings too,
where you can shout, scream, touch, cry, to express your anger!
- TO CHOOSE TO CONFRONT the Conflicts rather than to pretend
"harmony". Conflicts are necessary to change unequality, which is denied.
But: out of their 'expert' superior position psychiatrists define real
conflicts as "personal problems".
It is significant that the elitist nature of the Cngress is reflected in
its having been held at such venues as the Brighton Cnference Centre and
hotel Metropole etc. Why not organise it during the holidays in empty
school buildings, where each group can cook once??
Joyce, Monique, Aukje, Doetie
Translated and corrected by Siobhan Kilgurriff
Monique vld Mye / ex-consumer, worker in "patient movement"
Doetie Bakker / starter of some mad things, no more consumer
Aukje Westra / have been "mad", now working for "opatients" councils
Joyce Huugland / starter of a run away house, unemployed full of activities
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3.7.1985 Peace News "To be ourselves - challenging the abuses
of psychiatry" by Jim Read. It included a list of resources such as the
videos
Speaking from Experience -
We're not Mad - We're Angry [??] -
and
Psychiatric Oppression
16.7.1985
Jim Read
attended a branch meeting of Hackney Workers
Educational Association to discuss running a class on
"Your Mind in their Hands - Politics of Mental Health" at
Centerprise. The course ran on Tuesdays from 17.9.1985.
Summer 1985 Ceramic Hobs band started. Members are largely current
or ex-psychiatric patients. Bedrooms and Knobsticks in 1988
contained one of their songs. After 1988 their existence ceased until
relaunched in 1995. Four albums since - Psychiatric Underground
(1998), Straight outta Rampton (2001), Shergar is home safe and
well (2004) and Al Al Who.
Psychiatric Underground was their first album in 19 and Straight
Outta Rampton
5.9.1985 Victoria Helen Smith born.
External link to biography
-
2002 website
October/November 1985
OpenMind No 17 "Getting Back to the
Starting Line" - Jim
Read's personal story about being in
The Cassel therapeutic
community, with some more general comment about its strengths and
weaknesses.
Monday 8.10.1985 Chamh Annual General Meeting at Shoreditch Health
Centre.
Jim Read had been appointed as Chamh's (first) counsellor and
was due to start in November.
Wednesday 20.11.1985 Mental Distress in Old Age: Time for
Action published by City and Hackney Community Health Council.
|
1995/1996 was the official start of the survivor movement in England
That is - it is the date that has been celebrated as the start by bodies
such as
Mind and the
Centre for Excellence in Birmingham.
|
Thursday 28.11.1985 and Friday 29.11.1985
Mind
Annual Conference
From Patients to People
Saturday 30.11.1985/Sunday 1.12.1985 Sixteen service users and four
workers had a weekend meeting - Barbara Gill (from Mind) joined them on
Sunday morning and told them about a "consumer network" that Mind planned
to establish. On 12.12.1985, Lorraine Bell used East Dorset Health
Authority notepaper (but on behalf of the group) to write to Chris
Heginbotham (National Director of Mind) about the organisation of
conferences and the proposed network
|
Charlie Reid (left) -
Elvira Ridley (top) -
Thomas 'Tam' Graham (front) - Kathy (top right) - and
Vince Edkins (far right), members of Glasgow
Link group, feature on the cover
of
Social Work Today on Monday 9.12.1985. With Viorel Vernea, they had
made a presentation at the
Mind conference in Kensington Town Hall.
With them in the photograph are (centre) Jo Burns, a
worker from
Glasgow Link clubs - and a gentleman we have
not identified (bottom right) who is holding the slides used to make the
presentation. They are sitting on the steps of
Kensington Town Hall after making the presentation.
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4.12.1985 Lord Ennals in the House of Lords: "a two-day
national
conference organised last week by MIND, under the heading "Patients become
People"... I believe that people who are patients must be consulted about
their own future. They are people as well as patients... There is no
question of patient power. It is saying that patients are people. They
should be consulted about their own future. Often of course they are in no
position to decide their own future, but they should be consulted about
it... full consumer participation in service planning and delivery should
take place as of right
Lord Mottistone House of Lords: "I have here
the programme of the
conference that he chaired last week. I must confess that the titles of the
subjects spoken about frighten me. It seemed to be a conference more on the
politics of civil liberties than on care for the mentally disabled."
December/January 1985/1986 Peter Cambell
in Open Mind "It seems MIND wants to run things on their
terms. It is MIND for the mentally ill not MIND with the mentally ill."
1986
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Finding Our Own Solutions: Women's experience of mental health care
by Women in Mind, published by Mind in 1986.
Mentions - Women's therapy in
Yorkshire begining 1979 (pages 77-81) -
White City Estate, West London, project, initiated by Sue Holland in 1980
(pages 81-83) - Birmingham Women's Counselling and Therapy Centre, planned
1981-1983 (pages 84-85) - Bristol
Women and Mental Health (first open
meeting 1984) generated
Womankind (pages 102-103) - 1983 Scottish
Women's Health Fair and Glasgow Women's Health Fair (pages 103-104) -
Islington Women and Mental Health (grant 1983). Jan Wallcraft -
Womantalk, York, Summer 1985, the first women's studies class for
women receiving psychiatric treatment. Organised by Marilyn Crawshaw. A
second class started in Leeds. (pages 71-4). -
Womankind
Womankind,
Bristol Women's Therapy Centre was established in 1986 as a
registered charity. "We provide counselling, group therapy and on-going
support to women in the Bristol area" (2009).
(website)
Finding Our Own Solutions 1986 description: .
A
Woman and Mental Health group set up in May
1985 to explore funding possibilities secured "funding under the DHSS
Helping the Community to Care scheme". Womankind is "based at
the university settlement in Bristol"
[website] "accountable to the settlement but
managed by a separate committee". Aims to provide effective mental health
resources for women - to initiate self-help groups - to assess need
accurately - to promote health - to provide information - to liaise with
other agencies. "It is a multi-racial project which aims to confront
racism, oppressive stereotypes and prejudices of all kinds. Womankind
evolved because women from different backgrounds wanted to gain an overall
picture of how women are seen and treated inside and outside the mental
health system. We hoped to develop and understanding of what it is about
women's lives that leads so many to seek help from the medical, psychiatric
and social services." "There are three paid workers - two development
workers (one black, one white), and a coordinator".
(Finding Our Own Solutions pages 102-103)
August 1988 description: A women
and mental health self-help project, employing workers with special
responsibility for working [with?] Black women and women from other ethnic
minorities, a volunteer coordinator and a worker helping woman coming off
tranx. Support for self-help groups, information, contacts, workshops,
talks on women's mental health needs, drop-in groups, resources for black
women. (Mindwaves August 1988)
See
Summer 1986 -
Asylum Summer
1987 -
Address List May 1988 -
Survivors Speak
Out 10.9.1988
Bristol Crisis Service for Women
"Bristol Crisis Service for Women is a voluntary organisation and a
charity. We were set up in 1986, to support women in emotional distress.
We particularly help women who harm themselves (often called self-injury).
This is how some people cope with their feelings and problems."
(source old website, now redirects -
archive -
new website)
Founder members included
Maggy Ross and Diane Harrison."for the first time in my life"
[I] "met other people who self-injured. I no longer felt a freak, I found
some people who understood because they shared similar experiences" (Diane
Harrison)
Notes from Mark Cresswell:
1986 - a group of women , mostly self-harmers, meet under the
auspices of BWMHN
[Bristol Women and Mental Health?]. At this stage the membership
of
the group seems to
have been Maggy Ross, Diane Harrison, 'Jane', 'Sally', 'Holly' and
'Anne' (see Ross, 1988).They provide mutual support and 'begin to
discuss the possibility of starting a telephone crisis line run
exclusively by women for women facing these crises' (Ross, 1988: 46; see
also Harrison [in Pembroke], 1994: 8).
1987 - this planning and support continue.
Tamsin Wilton (1995 p.28) informs
us that she was "active in setting up and running the helpline from
1987-89"
January 1988 Telephone crisis line
started.
|
Spring? 1986
Ealing Mental Health Action Group
Probably 1986 that
David Hill became director at Mind in Camden. "He is
certainly
signing himself as director in early 1987" (Peter Campbell)
January 1986 A series of weekend meetings at Minstead Lodge in the
New Forest were paid for by the
King's
Fund,
on the initiative of
Lorraine Bell.
Survivors Speak Out was set up. The first meeting
(January 1986) was of
about twenty people - much larger numbers came to later ones
(August
1986 -
January 1987). Users of a
Chesterfield day centre were bused down, picking up people from Nottingham
on the way.
[Interview 11 in
Contesting Psychiatry]. The Chesterfield
connection was an important point in establishing the
autumn 1987 event at Edale
-
Helen Smith
from
the King's Fund Centre remained an ally, and the King's Fund Centre
continued to make a financial contribution to Survivors Speak Out for a
period of at least four years
(Anne Plumb). Lorraine described an animated discussion in which
the
name Survivors Speak Out was decided on - with survivor defined as
"survivors of a mental health system which eroded our
confidence and dignity, and survivors of difficult life experiences which
took us into the system
(Power in Strange Places p.16)"
Until 1988, Survivors Speak Out was the main network available to mental
health service users.
Mind Link
formed in
1988. The National Advocacy
Network (later UKAN) in
1990.
Voices started in
1986, but only became a network in the 1990s.
Survivors Speak Out
by
Peter Campbell February 2010
Peter was active in the formation of Survivors Speak Out
(from the November 1985 preliminary meeting). He was its first "Newssheet"
editor (from summer 1986) and played a lead role at Edale in September
1987. He was (formally) elected Secretary at the first Annual General
Meeting in September 1988.
Louise Pembroke was elected Education Officer. Peter appears to
have remained Secretary and (with assistance) Newssheet editor, until 1996,
when Louise became secretary.
Survivors Speak Out was founded early in
1986. For more than
ten years it was an important networking organisation for the
growing
survivor movement.
It owes its foundation to concerns that no UK service were represented at
the important
World Federation for Mental Health conference in Brighton in the
summer of 1985. Some
money was found to enable two [?] meetings of
survivors
and their
allies to take place and at the second of these, at
Minstead Lodge in the New Forest, the organisation was
established and its name chosen. [The name was chosen at the
January 1986 meeting - the first at Minstead Lodge.]
Survivors Speak Out had an individual membership with groups being able to
affiliate. There were two categories of individual membership - survivor
and
ally, an ally being someone who supported the group's aims and
objectives but did not define themselves as survivors/service users. A
number of allies played an important role in helping the organisation get
on its feet but when the constitution was developed
[See
1988] and voted through allies were given no vote at AGMs and
could not stand for the coordinating
group [See
1990]. Nevertheless, Survivors Speak Out
continued to have an ally
membership throughout the remainder of the 1980s and the 1990s.
The main objectives of the organisation in the beginning was to produce a
newsletter [Began summer 1986] and, most importantly, to
organise a national
conference where
survivor activists could come together. This eventually took place over a
weekend at
Edale Youth Hostel in the Peak District in the autumn of
1987.
The event was important as it brought people from different parts of the UK
together for the first time. About 100 people attended, including a small
number of allies. Not all the attendees were members of Survivors Speak
Out. A
Charter of Needs and Demands was unanimously agreed and a public
statement opposing Community Treatment Orders was also agreed.
In the months following the Edale Conference it became clear that Survivors
Speak Out did
not have the resources to adopt a regional structure. Apart from anything
else,
Mindlink was fast developing, building on
Mind's [then] regional structure.
Nevertheless, Survivors Speak Out played an important part in spreading the
word about the
possibilities of "self-advocacy" by sending speakers to local events where
service users were discussing action and by producing and selling a
Self-Advocacy Action Pack [early 1989] with practical
advice about how to set up and run a
local action group.
Although Survivors Speak Out had coordinating group members from different
parts of the
country, most of its core group came from London and the South East. As a
result it was often seen as a London group. For the first few years
[1986-1992] the
organisation had no office or paid worker but operated from the Secretary's
front room.
Eventually it acquired an
office base
and
an information worker [1992]
who ran an information service. She was later joined by an administrative
worker. Throughout its history Survivors Speak Out was being run on
relatively small funds.
Gloria Gifford was Information
Network Co-ordinator from 1992 to 1996.
In addition to the Self-Advocacy Action Pack, Survivors Speak Out produced
three other
publications -
Eating Distress [1992] -
Stopovers on my Journey Home From Mars [1993] (a
comparison of service user/survivor action in the USA, United Kingdom and
Europe -
Self Harm: Perspectives From Personal Experience [1994].
The latter was
the most successful publication, proving to be a pioneering work that is
still in demand.
Survivors Speak Out was more involved in facilitating action than in
traditional campaigning. It did campaign and lobby to promote "self-
advocacy". It did not, by and large, have agreed policies that it
campaigned around. One exception to this is compulsion and the Mental
Health Act where the group was always active, opposing any extension of
compulsory powers in the Act. For some years it seemed that its work was
helping to slow the move towards greater compulsory power but eventually,
the 2007 amendments to the Mental Health Act, including the introduction of
Community Treatment Orders proved a defeat for its long-held position. A
position it shared with much of the service user/survivor movement.
Survivors Speak Out's influence waned towards the end of the 1990s. This
was partly due to an inability to effectively replace the original core
group when they stood back from involvement and partly due to funding
drying up. It seems that Survivors Speak Out was never formally wound up
but it no longer plays an active part in the survivor movement as we enter
the second decade of the new millennium.
|
January 1986:
Start of
Nottingham Patients Council Support Group. This group led
to the establishment of
Mapperley Patients Council in September 1986
and the
Nottingham Advocacy Group in 1987 - [See
advocacy] -
On Our Own Terms
2003 Table 4 says this was an early example of the "first
patients' councils and user-led advocacy projects" (starting 1986).
A meeting organised by Nottingham Advocacy Group, in 1990, led to
the formation of the
United Kingdom Advocacy Network.
Another patients' council identified by
On Our Own Terms 2003 Table 4 is
Hackney Patients' Council.
This may refer to the Day Hospital Committee (see
above and
below.
The organisation
called
Hackney Patients Council
dates from 1994.
The video
Speaking from Experience was used as an aid in the setting up of
patients' councils in
Nottingham and Newcastle in 1986.
January 1986 DHSS Draft Circular Collaboration between the NHS,
Local Government and Voluntary Organisations [See
Joint Planning]
"planning should be directed towards meeting the needs of
individual patients and clients... Service providers, clients, their
families and community representatives including those of ethnic minorities
are to have the opportunity to make a contribution to planning, ensuring
the plans are seen by consumers..." (quoted
Collaboration for Change p.4)
Friday 14.3.1986
Lisa Haywood
was the contact person (it circulated
each month) for the
Hackney Mental Health Action Group meeting at The Old
Fire Station.
March? 1986 Barnet Action for Mental Health (BAMH) established. The
Community Health Council being the prime mover. The initial input was
mainly from professionals. By September 1988, more users were involved.
They had grants from
National Mind, the local authority and the
King's Fund.
|
North West Mind conference at Crawshawbooth, Lancashire
|
18.4.1986 to 20.4.1986 "over the weekend of" - "concerned totally
with involving consumers in Mind services" -
Crawshawbooth resolution conceived towards end.
Spring 1986 (Before 17.5.1986) Inside Out! Hackney's Mental
Health Newsletter No.1. "Some of us have been 'inside' and now we are
'out' as survivors of the mental health system." This carried a notice
about "We're not Mad - We're Angry", inviting people interested in being
interviewed to contact Dee Kraijj, Andy Smith or
Peter Campbell. Inside Out
could be contacted at the City and Hackney Community Health Council.
|
Spring 1986 Asylum - A Magazine for Democratic
Psychiatry
|
Asylum - A Magazine for Democratic Psychiatry sought to
be "the freest possible non-partisan forum for anyone in any way
involved in mental health work" The first issue had substantial material
on or including the
Campaign Against Psychiatric Oppression. The second included
some opposite points of view
Spring 1986: The first membership of Survivors Speak Out enrolled at
a meeting in Ivy Buckland's hotel bedroom at a conference in Newcastle.
(Survivors Speak Out Newsheet December 1988 , p.6)
9.5.1986 Meetings starting at Hackney Psychiatric Day Hospital
under the umbrella of the City and Hackney Community Health Council, Mental
Health Working Group. They were a developement of the
Hackney Day Hospital Patients Committee
established by patients over a year before. As one of the participants, I
(Andrew Roberts) see this as
revisiting the meetings first set up in
July 1974.
Valerie Argent (Roberts) and Lorna Mitchison were
active in setting the meetings up and Sheila Nash chaired. There is a
report of the meetings from Alan Leader in minutes of
2.11.1986 and a
newsletter in
Spring 1987 reported on the development of
this Patients Committee.
Saturday 17.5.1986
HMHAG (Hackney Mental Health Action Group) public meeting:
Psychiatric Treatment: Are Drugs Really Necessary? Homerton Library.
Saturday 2.8.1986 - Sunday 2.8.1986
"Will anyone wanting to go to MINSTEAD LODGE for the
Survivors Speak
Out weekend (AUGUST 2-3) contact
Peter immediately on 450 4631 -
DAVE KESSEL please note !! - or you won't get a place - Peter
will answer any queries."
(Hackney Mental Health Action Group
notice for its own meeting on Friday 11.7.1986)
Summer 1986
Asylum
number 2: page 11 notice:
Survivors Speak Out Survivors Speak Out Conference 1986 is to be
organised after discussion between members of the following groups
Link: Glasgow Association for Mental Health
Contact:
Tontine Road Centre, Chesterfield
Bristol Women and Mental Health Survivors Group
Womankind,
Bristol
CAPO (Campaign Against Psychiatric Oppression)
Camden
Mental Health Consortium
British Network for Alternatives to
Psychiatry
Nottingham Mind
Hackney
Mental Health Action Group
South West Mind
Survivors Speak Out wishes to launch a national self-advocacy movement for
users of the psychiatric services. Our first goal is to hold the national
conference, for which we are currently raising funds. [Contact
Ivy Buckland, Tontine Road Centre]
Summer 1986
Survivors Speak Out No.1 - 50p
16.7.1896 First Meeting of the Independent Living Committee of
Hackney Forum for Disability. Sheila Nash represented mental health serivce
users.
Late summer 1986? Alan Leader became a mental health service user in
Hackney Day Hospital - and an instantaneous patient activist.
Autumn 1986? Crisis Line - Bristol set up for women in distress.
Took calls from women all over the country.
November 1986
Wouther van de Graaf interviewed Eric Irwin and Frank Bangay for
Asylum. The interview was arranged because of Eric and Frank's concern
about criticisms of CAPO in
Asylum. Wouther van de
Graaf unintentionally returned to the Netherlands with the tape of the
interview and, consequently, it was not published until
April 1989. In the
interview, Eric gave the first account I have traced of the 1973 Mental
Patients Union as an origin of anti-psychiatry and the proginator of
PROMPT
and CAPO:
"The anti-psychiatry movement of which CAPO is a part goes back
to
1973, with the emergence of the
Mental Patients' Union and also, in the
same year, independently,
COPE, which was the Community Organisation for
Psychiatric Emergencies. Both these movements ran for three years or so.
Then some of us who were in COPE and MPU got together and found
PROMPT,
which stands for the Promotion of the Rights of Mental Patients in
Treatment. That continued until April 1986"
[March 1985?] "when it was decided that we no
longer wished to have the words 'patients' and ,treatment' in the title. At
my suggestion we decided to change it to The Campaign Against Psychiatric
Oppression
(CAPO)"
Monday 20.10.1986 Chamh Annual General Meeting at Shoreditch Health
Centre. Andrew Roberts listed present as a Chamh member; Lorna Mitchinson
as from City and Hackney Community Health Council;
Lisa Haywood and Ian
Ray-Todd with their addresses rather than an organisation. Lisa Haywood was
appointed to one of the two positions on the Executive Committee for
representatives of "former/current users". The other position remained
vacant. These positions had been created by a constitutional amendment at
the same meeting, which Lisa had seconded.
Jim Read was not listed as present.
Mind Annual Conference - Hammersmith
13.11.1986-14.11.1986
Public Image - Private
Pain
Hammersmith Town Hall, London, W6
This was
another consumer dominated conference.
Peter Campbell recalls that "there was a strong negative vibe
with people getting up from the floor and saying how badly they had been
treated.
Nursing Times
did an article afterwards accusing us of having nothing positive to offer."
(email 4.4.2010). Full (plenary) sessions included a charismatic one by
David Brandon (director of North
West Mind at the time) and one run by three or four members of Survivors
Speak Out. The collective who made
We're not Mad - We're Angry ran a workshop
about the making of the film.
Survivors Speak Out and the
The British Network of Alternatives to Psychiatry both ran
stalls. This may have been the first time survivor groups had stalls
at the conference, as they did in many subsequent years (and I
expect still do). Survivors Speak Out lobbied Mind for a survivor run quiet
room at conferences. Peter cannot recall if one was provided at this
conference (email 6.4.2010). Entertainments,
organised by
Frank Bangay, took place in a pub in Parsons Green, Fulham. A
handbill for the survives.
|
MIND Consumer Network (ballot for)
|
Friday 14.11.1986 Ballot 1: "As a matter of urgency MIND (NAMH)
should develop a broad based consumer network to ensure that Mind's policy
and work is informed by and reflects the views of consumers of mental
health services". Ballot 2: The
Crawshawbooth resolution to Mind National
Conference: "All local associations must include at least one consumer of
mental health services on any management or executive committee by
1.4.1987".
On Our Own Terms 2003 Table 4
says: "1986 onwards Media impact is made by the emerging movement: Many
individuals speak out on radio, TV and in published articles."
17.11.1986
We're Not Mad We're Angry 70 minute TV
programme/video on
Channel 4 from 11pm to ten minutes past midnight. (See
Multiple Image Productions.
Led by survivors, it was critical of the biomedical model of mental
illness. White and
black survivors give their perspectives on mental health services. Shown as
part of the MIND'S EYE season (a critique of Britain's psychiatric system
from the patients perspective), it is the result of two years collaboration
with a collective of present and former psychiatric patients. The producer
was Tim Langford and the director John Hay. - A 64 minute version
is available from Concord Media
November 1986 Breakdown on Capital Radio, produced by
Peter Simmons and Mark Halliley. Mental breakdown as experienced by two
young Londoners. The man is
Mike Lawson, who put the
programme online in August 2009. -
offline - The woman remained anonymous.
"A marvellous example of sound employed to open up another realm of
consciousness" (The Times of London). Breakdown won Gold at the New York
Radio Festival was specially commended in the Prix Futura Berlin.
Mind distributed a tape of the
programme. Cover illustration: Phill Ellinston. Capital Radio PLC. 1986.
Thurstine Basset's collection.
21.11.1986 Meeting of Hackney
Mental Health Action Group received a report from "Alan (who is
on the committee)"
[Alan Leader] relating to the Patients Committee at the Day
Hospital. "We also discussed the effectiveness of the Patients' commitee
and the Dutch model of Patients' Councils.
Jim will contact
Lorraine Bell to see
if she knows about videos or speakers about the patients councils. Lorraine
was the contact for
the next national meeting of Survivors Speak Out, noted at the
same meeting.
24.11.1986 Meeting that established The National Voices
Forum. Established by the
National Schizophrenia Fellowship - See
1988 -
It changed its name to The National Perceptions Forum
Link to website about 2007, when it celebrated its
21st birthday. This is a network of people with the diagnosis of
schizophrenia for mutual support and recovery, and to eliminate stigma
and misunderstanding.
On Our Own Terms
2003 Table 4 gives its "peak membership" as 500. The Forum's
magazine
Perceptions started in 2000 - Some web archive
links:
-
official site started
20.4.2001 - The
leaflet on the web is first recorded 3.8.2001 -
Zyra's copy started on 25.12.2001.
26.11.1986 "Removing labels - Psychiatric nurses were given a
dressing down by the users of the service at the mental health pressure
group
MIND's annual conference. Martin Vousden found out why."
Nursing Times. 26.11.1986. "many of those who spoke from the floor
and conference platform, also appeared in the Channel 4 television
programme
We're Not Mad, We're Angry, transmitted a week after the
conference. Which is appropriate timing because the conference was ...
intended to look at how public images of mental illness are formed".
Heart 'n Soul was founded in 1986 and based at the Albany
Theatre in Deptford. It consisted of a small band and 12 performers. All
people with learning difficulties.
London Disability Arts Forum was founded in 1986
(website)
1986
What They Teach In Song - Poetry About Psychiatric
Experience - The first?
CAPO collection.
1987
In 1987
Mary O'Hagan set up Psychiatric
Survivors, in Auckland, New Zealand, after reading
On Our Own by Judi Chamberlin.
Stichting Weerklank (Foundation Resonance). See Wikipedia on the
Hearing Voices Movement - See below
1988
1987 Althea and David Brandon Consumers as Colleagues Mind. 34
page
pamphlet. Thurstine Basset's collection
From 1987, Robert
Dellar was working for "various Mind affiliations".
(Mad Pride 2000,
p.211)
9.1.1987 Minutes of Hackney
Mental Health Action Group Item 11: "Users Meeting with Chris
Higginbottom of MIND
Lisa [Haywood] had
attended this meeting with users groups from different areas about issues
of concern to them. She will now be on the Planning Group for the next MIND
Annual Conference
". At the same meeting there was discussion of setting up
an in-patients committee at the hospital.
23.1.1987 - 25.1.1987 A
Survivors Speak Out weekend at
Minstead Lodge
18.2.1987 Meeting: "
Val Roberts spoke for the
Day Hospital Patients' Committee on
the problems as seen by the patients, and
Lisa Heywood spoke on
CHAMH and its involvement
with the patients committee over the 2+ years of the committee's existence.
Saturday 7.3.1987 British Network
for
Alternatives to
Psychiatry Study day on the Use, Abuse and Alternatives to
E.C.T and Major Tranquillisers.
March 1987 Insight (Brighton) formed. In the summer of 1987 about
fifteen people were involved and they were seeking funding. "Write to
Richard Pennel, Brighton Mental health Group, 17-19 Ditchling Rise,
Brighton, BN1 44L" (
Asylum Summer 1987). By September 1988
it consisted of up to 30 users/ex-users and some allies. It met weekly "bi-
weekly there is a business meeting where users and workers from the
locality are invited to share experiences, knowledge and initiatives".
"Insight are quite involved in service planning. Members also have input to
ASW training and run other workshops. Members of Insight drew up
a draft Charter of Rights" and work was done on rights issues in liason
with a local Law Centre.
(Survivors Speak Out AGM September 1988)
|
Tuesday 5.5.1987 Constitution of Hackney Union of Mental
Patients set up "for the purpose of obtaining or devising useful and
gainful ways of work"
Joan Hughes, Tony
O'Donnell (the founder) and David Kessel prepare to leave
the Old Fire
Station, Stoke Newington for a Hackney Union of Mental
Patients expedition to Walthamstow Marshes
|
|
May? 1987 Bristol Survivors started after a large meeting to find
out what people wanted. -
Address May 1988 -
Notes for AGM August 2005 say "Bristol Survivors Network started
off as a branch of Survivors Speak Out over 20 years ago. Survivors Speak
Out folded and closed its London office a few years ago, but we kept going
mainly due to the commitment of Viv Lindow who unfortunately can't be with
us tonight. This is our first AGM, although we have a constitution, we do
not follow it to the letter. A Chair is usually decided upon at the meeting
and we usually have a Secretary (thanks to Claire Barnard) and a Treasurer.
This was Liz Macmin, now Pauline Markovitz with Susan Rooke-Mathews as
assistant Treasurer."
|
|
MIND Consumer Advisory Network (Steering Group for)
|
Summer 1987
Notice that a steering group had been set up for a
MIND Consumer Advisory Network. It had been decided that the co-ordinator
would necessarily be a consumer.
Peter Campbell was a member of this steering group. Not all the members
were survivors. Others who were included
Lisa Haywood,
Colin Gell and
Peter Beresford.
When Jan Wallcraft became the first paid worker (part-time), Peter Campbell
decided he could not be a mindlink person and a Survivors Speak Out person,
so he dropped out of any major involvement in MindLink. Although he has
always been a member.
Mind established its
Consumer Advisory Panel
before
Jan Wallcraft's
appointment.
She says she
"worked with the existing Consumer Advisory Panel, meeting a
host of stars such as
Peter Beresford,
Lisa Haywood, Graham Estop and Anna Neeter"
Summer 1987 Islington Mental Health Forum, set up with assistance
from Good Practices in Mental
Health, was "now well established" and had "secured premises to
operate from". "They are particularly concerned about the closure of
Friern-Barnet
Hospital and have started a Friern Interest Group which meets at
the hospital". For information contact The Old Darkroom, The Laundry,
Sparshott Road, Islington, London, N19 (
Asylum Summer 1987)
Asylum Summer 1987 says
New Patient's Council Support Group being established at Southampton.
The Southampton group was set up after a Nottingham Patients Council
Support Group Workshop. Southampton Patients Council Support Group
was started by a local user group in the
Department of Psychiatry. "The groups hold regular ward meetings
to discuss whatever the patients want to talk about - there are no minutes
or agendas, which patients do not want. There is Joint Fiance funding for
three years with a promise of lifetime funding if all goes well. They have
a say in Joint Planning but no office or other facilities" (Mindwaves,
December 1988)
September? 1987
Ingrid Barker and
Edward Peck, editors, (1987).
Power in Strange Places
- User Empowerment in Mental Health Services. London,
Good Practices in
Mental Health - Discussion includes patient councils and
advocacy -
Articles include:
Colin Gell, "Learning to Lobby, The Growth of Patients' Councils
in
Nottingham" -
Lorraine Bell, "Survivors Speak Out. A National Self-Advocacy
Network" -
Ivy Buckland, "Power Through Partnership. An Account of the
Contact Group in Chesterfield" -
Peter Campbell, "Giants and Goblins. A Description of Camden
Consortium's Campaign to Change Statutory Plans" -
Judi Chamberlin,
"The Case for Separatism. Ex-Patient Organising in the United States -
30 pages -
Anne Plumb collection. -
COPAC lists copies in several libraries. -
Review by Peter Tyrer in Psychiatric
Bulletin
|
"The Self-Advocacy Movement in the UK" by Peter Campbell
probably describes the period before Edale. He speaks of
Survivors Speak Out "acting as an umbrella organisation,
campaigning and fund-raising towards a national conference of service users
and their allies" (page 209). People like himself had adopted the terms
"self-
advocacy"
and
"self-
advocate"
over the eighteen months or so since Autumn 1985 (page 209). He speaks of
"over a dozen groups in this country speaking and acting for themselves in
the area of mental health".
Ealing, Barnet,
Camden,
Islington and
Hackney have self-advocacy groups,
CAPO
and BNAP are based in
London. "Outside of London"
Glasgow,
Chesterfield,
Nottingham and Bristol
also had "large and flourishing groups". "In other cities like Southampton
there are the beginnings of groups run by users" (page 209) [Compare with
Summer 1986 list of groups planning the conference]. He did not
think "more than 400 people at the most are directly and actively in
Britain at present". (page 212). "The majority of existing groups are
alliances of users and workers with a small element of 'carers', each
alliance weighted in a different way" (pages 206-207) Only CAPO and
Sagacity in Community Care (SICC) claim to be user only (page 206).
"In broad terms", Peter says,"there are three main types of group"
1) The national campaign groups:
CAPO (Campaign Against Psychiatric Oppression) and
British Network of Alternatives to Psychiatry
"Although based in London they address themselves to
the whole of Britain, do not concentrate on local matters but campaign on
major issues affecting the whole of the psychiatric system such as the
abolition of ECT, no compulsory element in psychiatry, the provision of
adequate facilities for withdrawal from major tranquillizers.They are
limited in size...but increasingly active in certain areas where they are
now being noticed..."
The locality based group London examples:
Camden Mental Health Consortium -
Barnet Action for Mental Health -
Hackney Mental Health Action
Group. "...often set up with initial involvement by community
health councils, concentrates on its local area and on the problems of the
psychiatric systems expressed in the local services".
"Groups connected to existing service provisions or which are themselves
supplying significant services"
"
Link attached to Glasgow Association for Mental health and
Contact at Tontine
Road Centre in Chesterfield are examples of the former, whilst
Bristol Women and Mental Health - an umbrella
covering a number of services for women in Bristol - is a notable example
of the latter." (page 211)
"Finally mention must be made of the
Nottingham Patient Council Support Group (NPCSG)
which is establishing the idea of patients'councils within psychiatric
hospitals along lines inspired by the example of the Patients' Councils in
Holland" (page 211)
|
Friday 18.9.1987 to Sunday 20.9.1987
Survivors Speak Out organised the first United Kingdom
conference of mental
health service users/survivor activists over a weekend at an Edale Youth
Hostel.
The team largely responsible for organising thigs were
Lorraine Bell as "coordinator" -
Ivy Buckland as treasurer -
Peter Campbell as secretary -
Jackie Biggs "publicity" -
Rick Hennelly (local
transport).
Friday evening: social gathering
Saturday Groups on topics suggested by people there, including *
Women and mental health * Major tranquilisers * The
Community Treatment
Order * How to achieve user-involvement * Surviving without
medication *
The role of allies in self-advocacy and their relationship to users.
The conference produced a list of 15 "needs and demands" (Survivors
Speak Out 1987, Charter Of Needs And Demands (Edale
Conference Charter), London, Survivors Speak Out)
"
Mary Nettle entered the mental health system in 1977. There
was no discussion about medication or someone's problems. Treatment was
totally drug oriented. One day her Community Psychiatric Nurse gave her a
leaflet about the Edale conference. She felt the description "survivor"
was just right and felt herself to be a survivor of life. She warmed to
the friendly but efficient style in whcih the leaflet was written, and went
to the conference with a group of people. It was a most amazing experience.
A great array of ideas was expressed, "and there was
Peter Campbell,
holding it all together".
(Two decades of change conference)
"The grass roots movement that created the Edale Charter, also
created the
UK Advocacy Network (UKAN) in the early 1990s"
(Terry Simpson,
UKAN)
Autumn 1987 Towards the end of his life
Eric Irwin spent a lot of
time in the library at the Westminster Mind
headquarters on the Harrow Road. It was here in the
autumn of 1987 that he collapsed and was rushed to
hospital. For a while, Stephen
Ticktin looked after Eric in his (Stephen's) own home. Eric died
in St Joseph's Hospice, Hackney (see below).
October 1987 Publication of Asylum to Anarchy by Clair Baron.
Thursday 8.10.1987 Inaugural meeting of the
London Alliance for Mental
Health Action (LAMHA pronounced llama) [Has also been
stated
as 1.10.1987] - See
5.12.1987 -
17.9.1998 -
4.3.1989 -
20.6.1989 - Active
until
1991/
1992. - See Rogers and
Pilgrim June 1991.
9.10.1987
Hackney
Mental Health Action Group AGM elected Lisa Haywood and Ian Ray-
Todd as co-chairs and Lisa Haywood to the "MIND Consumer Advisory Panel"
Saturday 5.12.1987
London Alliance for Mental Health
Action anti
Community Treatment Order demonstration. March from Marble Arch
to the Royal College
of
Psychiatrists.
|
11.12.1987 "Hugs not Drugs" Greenford, Northolt and Southall
Recorder
|
1987
Compulsory Community Treatment Orders
Survivors Speak Out Information Sheet by Dave Lowson.
(Anne Plumb collection). -
Just before Christmas 1987
Eric Irwin died in St Joseph's Hospice, Hackney after a year
long struggle with undiagnosed cancer.
CAPO was continued until 1991
largely by Eric's friend
Frank Bangay. After Eric's death it decided to
affiliate to
Survivors Speak Out. Frank's tribute to Eric was published in
Asylum Volume 3, No 1, Summer 1988. His poem "The Laughing
Flowers" ("Never really felt so sad before - I try to reach myself through
my craziness") was written in the Spring of 1988.
Naked Songs and Rhythms of Hope pages 17-18)
1988
Mind Consumers Network
Newsletter:
Mindwaves in
August
1988: Wokingham and District Mind founded. It affiliated to
National
Mind in 1989. Crisis House in Station Approach, a user
run crisis centre, opened by
Pam (Pamela) Jenkinson on
2.4.1991.
It is now West
Berkshire Mental Health Association.
(website)
Hamlet Trust established by
Peter Barham -
Its first project was to establish the Bradford Mental Health Advocacy
Group (now
Bradford and Airedale Mental Health Advocacy Group)
|
Changes in organisations 1988/1989 - From
Rogers and Pilgrim 1991
Voices - the National Schizophrenia Fellowship funds an
ex-patient as an organiser. It describes its
meetings (Voices Forum) as a support group 'run by and for
schizophrenics'. At the time of the research it had a membership of
around fifty people. [Presumably just users]
Survivors Speak Out - a national users' organisation with
over fifty local groups. "It aims to facilitate communication between local
groups of users and their professional allies promoting self-advocacy. In
June 1988 the paidup membership of this group was 230" [Presumably,
allies and users]
Mindlink an information network facilitated by an ex-patient
salaried by national MIND. At the time of the research it had around two
hundred members.
|
January 1988 Collaboration for Change - Partnership between
Service Users, Planners and Managers of Mental Health Services
King's
Fund
Centre Discussion Paper by
Helen Smith. The outcome of regular group
meetings of people form
Good Practices in
Mental Health
- the National Council for Voluntary Organisations, Waltham Forest Health
Authority and the King's
Fund
January to March 1988 Survey of City and Hackney Psychiatric
Services carried out following "intense criticism" by the City and Hackney
Community Health Council and others. "The patient questionnaires were
distributed through a specially briefed team of patient advocates drawn
from Community Health Council Staff, Hackney Mental Health Action Group,
Federation of Consumers of the Mental Health Services and the Family Centre
Staff (HCRE). One further advocate was an Administrative Worker from
CHAMH". April 1988: "Mental Health Services - Initial Report on
Survey of Views of Psychiatric Patients Mid January to End of February
1988" (CHCHC Mental Health Working Group). Later: City and
Hackney Health Authority Psychiatric Services. Survey of Mental Health
Facilities as perceived by the Providers and Clients 1988 Michael Lung
- Support Nurse.
|
Mark Cresswell describes "1988-1996" as "a period that witnessed
a first phase of self-harm survivor activism in England."
|
January 1988 Bristol
Crisis Line opened by
Bristol Crisis Service for Women - Telephone
Bristol 354105 Friday and Saturday
evenings, 9 to 12.30 - run by women for women in the Bristol area.
Counselling service for women feeling isolated and distressed - "received
media attention with articles focused on women and self-harm. The line
receives up to 12 calls a night, and women who have phoned often become
volunteers with the project. Volunteers are doing education work in
hospitals - talking to psychiatrists and social workers - and aim to
negotiate suitable consultancy fees" (Mindwaves December 1988) [Mark
Cresswell says BCSW starts to run a national telephone help-line for women.
-
Address May 1988 - See
Guardian 28.6.1988
8.1.1988 New Society "Asylums with Long Arms: Last month
mental health patients groups demonstrated outside the Royal College of
Psychiatrists in Belgrave Square.
Jim Read explains why". This was about opposition to community
treatment orders. A brief extract: "A recent national conference of
Survivors Speak Out, which attracted 100 participants, voted unanimously to
oppose CTOs, and set up regional coalitions to campaign against these."
February 1988
Conference on Co-ordinated Care organised by what became
The Sainsbury Centre for Mental Health.
Have we got views for you
(1994) says "the views of service users were largely overlooked". This was
illustrated in the language of "cases" and "case managment". "This led to
The Sainsbury Centre's
first efforts to bring in a user perspective. A
group of users from around the country began to meet together to produce a
response to Towards Co-ordinated Care" See
1990 -
1.3.1994 -
Diana Rose -
Perspectives on Manic Depression -
1998 -
workbook -
Jan Wallcraft
(2001) -
23.1.2001 -
2.6.2003 -
12.9.2003 -
30.11.2004 -
2005 -
2006 -
2007
May 1988 First
Survivors Speak Out Newssheet
Survivor Speak Out Address List May 1988
(Known groups)
May 1988
Distress Awareness Training Agency (DATA) established.
"Individuals with personal experience of emotional and mental distress
who provide service-user and survivor led training, research and
consultancy".
Describes itself as "the UK's longest established group of this
kind". - Three founder members were
Andrew Hughes -
Anne Plumb - and
Tony Riley. Helen Gibb joined during 1988.
20.6.1988 Date on proposal to formally set up a Mental Health
Awareness Trainers Group which accompanied the first application (late
1988?) from
DATA to the Disabled Employment and
Training Action Fund (DETAF) administered
by the National Council for Voluntary Organisations.
(Anne Plumb collection). The application was
to undertake initial organisational development work, to
look at ways of establishing contacts within the North West, to produce a
training course and to look at the type of organisational structure that
might suit DATA. It was designed to create 10 weeks of part-time work
for DATA members. "I had to drop out early days as I was busy with a spot
of
madness" (Andrew Hughes). See
November 1991 -
Autumn 1992 -
29.5.1993 -
late 1993 -
June 1994 -
Asylum Spring 1995 -
6.10.2001 (website) -
Asylum 2002
21.5.1988 Oldham meeting of "North-West Mind Consumer
Network" -
The first of the regional networks. Irene Whitehill was a
founder member.
28.6.1988 Michelle Hanson's article in The Guardian "Letting out
the big scream inside" "self-destructive behaviour is not uncommon among
women. Their numbers are growing and there is little help for them", She
interviewed interviewed
Maggy Ross,
Diane Harrison
and 'Ellie'. Also about this time (mid-1988)
Maggy Ross published an article in a woman's lifestyle magazine
called The Company.
8.7.1988
Consumer Advisory Panel Workshop - Harley Street
August 1988 Issue one of
Mindwaves - The Newsletter of the MIND
Consumer Network. At this stage, the network claimed about
200 members.
Members were entitled to two years free membership of Mind. "So do
fill in the forms and send them back and you will be able to come to the
AGM on
19th November in London to vote for the Council of Management"
(page 1).
Autumn 1988 First interviews by Anne Rogers and David Pilgrim in
research that led to Pulling down churches. The names of interviewees
have not been stated.
Peter Campbell and
Jan Wallcraft
believe they were interviewed.
Mike Lawson also appears to have been
interviewed.
Frank Bangay believes he was not.
Eric Irwin was dead. See
opinions and
Voices
Saturday 10.9.1988
Survivors Speak Out Annual General Meeting at Hampden Community
Centre. Contact was
Lorraine Bell, Southampton.
Saturday 17.9.1988
LAMHA street theatre event "Psychiatry on
Trial"
Monday 26.9.1998 to Thursday 29.9.1988
Common Concerns: International Conference on
User
Involvement in Mental
Health Services
|
Autumn? 1988 "About a dozen users from all over England" met with
"staff at the
National Unit for Psychiatric Research and Development who are
preparing a report on "The Co-odination of care for People Disable by Long
Term Illness" for the DHSS"
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October/November1988 OpenMind No 35:
"ECT - A controversial treatment: counsellor and former mental patient,
Jim Read, argues that Mind has failed to present the case
against ECT and ignored the viewpoint of many people who have received
treatment." (A response to Mind's special report which 'cautiously condoned
the use of ECT'.)
19.11.1988 Mike
Lawson
elected vice-chair of
Mind at the MIND A.G.M, replacing
Dr Hugh Freeman. Served
until 1994, when he was replaced by Judith Morgan-Freer. In his
Testimonies' interview, Mike Lawson
refers to "me being elected Vice Chair of National Mind as a
collective
action, you know amongst survivors and our groups and lobbies". Mike says
(in an email) that his election "was immediately challenged by the Royal
College of Psychiatrists because of a claim against
David Hill for
promoting my candidacy by mailshot from
Camden Mind. So my inception was
delayed and a re-election announced. However my rival failed to stand."
Anne Plumb
remembers "reading in the pages of The Guardian, Hugh Freeman
(already/later deposed as vice-chair of Mind by Mike Lawson)
defending his
take on psychiatry against survivors and allies (the correspondence was
carried over several days).
Asylum Winter 1988. The cover of this
edition is displayed on the wall behind the Survivors Speak Out stand at
the
November 1988 Mind Conference below. The
edition contains a report headed "Mind 1987 Conference Report"
which also reports on the AGM that elected Mike Lawson (above)
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|
"A "Scottish Users Interest Group" first met in December 1988 with a
view to forming a national network. From this inaugural meeting the
Scottish Users Network was formed, which has a current membership of
45 people, drawn from all over the country. The Scottish Users Network
adopted a constitution in October 1990, and charitable status has
been obtained. (from a letter from Brian Sinclair, the then Secretary of
the Scottish Users Network, undated but written in the aftermath of
the
1991 conference, which he had attended."
(UKAN archives). - See also
July 1989 -
March1994 -
Asylum 1995
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December 1988 First edition of
Psychiatry in Transition: the British and Italian
Experiences. Contains some acknowledgment of users' opinion.
Section on "The Users' Perspective" contains an article by Ann Davis called
"Users' Perspectives" about Britain and one by Maria Grazia Giannicheda"
called "A Future of Social Invisibility" about Italy. Both are mostly about
mental health policy in their country, but the issue of a consumers' view
is addressed.
1988
Mind the Gap Theatre Company inclusive theatre group for
actors with and without a learning disability
1988 First United Kingdom
Hearing Voices
group established in
Manchester - See
Hearing Voices Network box
- On Our Own Terms
2003 Table 4 says: "1988-present The Hearing Voices network
(based on the work of Professor
Marius Romme in
Holland)
began holding national events in 1990/1991 and now has 100 groups across
the country." See
Asylum July
1989 -
October
1989 -
Asylum Summer
1990 -
Asylum Winter
1990/1991 -
Conference November 1990 -
Independent Hearing Voices 6.1.1991 -
Asylum Spring
1991 -
Asylum Summer
1991 [??] -
1991 Conference -
Asylum Winter
1991/1992 -
1992 Conference -
1993 Conference -
Late 1993
Newsletter 10 -
February 1994 Newsletter 11 -
13.4.1994 -
May 1994 -
August 1994 Newsletter 13 -
1994 Conference -
December 1994 Schizophrenia Media Agency -
April 1995
Horizon -
1995 Conference -
1996 Conference -
1997 Conference -
2000 Terence
McLaughlin Thesis -
First "World Hearing Voices
Day"
On Our Own Terms 2003 Table 4
says: "1988 Influential publications by service users/survivors emerge:
A notable influence on the movement" was the publication by Mind of a
British edition of
"On Our
Own by Judi Chamberlin - an exploration of
the rise of the survivor movement in the US." "Numerous local
publications and newsletters by service user/survivor groups begin to
emerge, critically examining services and describing personal experiences."
1989
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"It was
Survivors Speak Out members who came up to early meetings in
Edinburgh when the movement was getting started here. Through these early
meetings Lothians' first user group was formed, Awareness, in 1989."
(Kirsten's blog)
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|
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Royal Edinburgh Hospital Patients' Council
Royal Edinburgh Hospital
Morningside Terrace
Edinburgh
EH10 5HF
(website)
"The Patients' Council was set up in 1989 and continues to be based in the
Royal Edinburgh Hospital. It facilitates collective advocacy for
patients
and former patients of the hospital, bringing about change in the way that
services and treatment are provided"
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Department of Health (January 1989) Working for Patients
(Griffiths
Report). (Cm. 555)
London: HMSO, "recommended that consumers of health care should be involved
in future developments and evaluation of services provided by the NHS"
Since then "successive governments have sought to strengthen the role of
patients as active participants in their relationship with those who
provide services."
(Mike Crawford, March 2001)
Lucy Johnstone Users and Abusers of Psychiatry: A Critical Look at
Traditional Psychiatric Practice, London: Routledge, 1989. See
Asylum Spring
1992
March 1993 -
OpenMind 1994 -
Asylum 1994 -
Asylum 1999 -
Asylum 2000
Early 1989
Self Advocacy Action Pack: Empowering
Mental Health Service Users first produced by
Survivors Speak Out.
4.3.1989
London Alliance for Mental Health Action anti-
SANE
advertising demonstration at the Imperial War Museum. Included
Street Theatre.
16.3.1989 "Mental health split" City Limits
24.3.1989
"Groups lock horns over schizophrenia posters" Hampstead and Highgate
Gazette?
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|
1.4.1989
IMPERO (Irish Mental Patients' Educational and Representative Organisation)
founded -
(external link)
|
27.4.1989
Jan Wallcraft's article "Winning through against fear and
contempt" in Community Care described the
Mind consumer network.
(Anne Plumb collection).
5.4.1989 First session of Having a Voice Conference for people
who use Mental Health Services in North
Manchester. Organised by Manchester Users' Support Group, North
Manchester Community Health Council and North Manchester Health Authority.
There were three sessions in all. The other two were on
19.4.1989 and 17.5.1989. See
Manchester index.
20.6.1989 Members of the
London Alliance for Mental Health Action were involved in
setting up and participating in a meeting in the House of Commons between
Robin Cook MP (then Shadow Minister for Health), Harriet Harman and Keith
Vaz, and "forty or more mental health service users, representing most of
the mental health action groups, Patients' Councils, Consumer Networks and
advocacy projects". "The meeting was chaired by
David Hill, Director of
Camden MIND, who has put in a great deal
of work and effort to convince the Labour Party to give greater priority to
mental health issues and the importance of consulting the 'users'." (Jan
Wallcraft
Mindwaves Summer 1989, page 7)
Asylum July 1989
Nottingham Patients Council Support Group appoint a worker.
[Colin Gell]
Mention similar developments in Brighton, Leeds,
Newcastle.
Scottish Users' Network established.
July 1989
Romme and
Escher 1989. "Effects of mutual contacts from people with
auditory hallucinations". Perspectief no 3, 37-43, July 1989. In 1989 they
also published "Hearing Voices" in Schizophrenia Bulletin 15 (2):
209 - 216
Paddy McGowan recovered from Schizophrenia with the support of other
survivors and participated in the original study (Romme/Escher, 1989) into
hearing voices. See -
UKAN1992 -
1994 -
Irish Advocacy Network 1999
September 1989
Patient advocacy- Report for Public Policy Committee
of the Royal College of Pschiatrists.
offline - This policy was reviewed in
1999
5.9.1989
Looking at self-harm: the first national
conference
on self-harm to be held in the UK, "entirely organised by the recipient
movement" at the International Students House in Great Portland Street in
North London.
Louise Pembroke organised the conference as Education
Officer of Survivors Speak Out.
Alan Leader
spoke a few words of
introduction and Louise Pembroke "chaired and co-presented with the other
speakers." One of the speakers was
Maggy Ross:
"I'm Maggy and I started to cut my body 5 years ago. I go to
casualty and get hauled onto the psychiatric bandwagon. I am then given a
nice little 'label'. The current label is Schizophrenia. That's how the
professionals see me. I'm a self-destructive Schizophrenic. But how do I
see myself? I am a survivor of sexual abuse and a survivor of the system. I
know why I self-injure. When I feel I am losing control, I reach for a
razor and prove to myself that I can have control over my body. When I am
lost for words, my cuts speak for me. They say - look - this is how much
I'm hurting inside ... I'll tell you what self-injury isn't - and
professionals take note. It's not attention seeking. It's
not a suicide attempt. So what is it? It's a silent scream. It's a visual
manifestation of extreme distress. Those of us who self-injure carry our
emotional scars on our bodies." (Quoted in
Self-Harm Perspectives. This is an edited
quote from
Cresswell, M. 2004)
"I found it incredible to listen to individuals talking about
their...inwardly directed aggression and then to learn that in accident
and emergency departments some of them have been deliberately stitched
up without the use of anaesthetic". (Peter Campbell reflecting on the
conference in
Open Mind December 1989).
Asylum October 1989, p.16 says
"Congratulations for the pioneering efforts of the City and
Hackney Federation of Consumers of the Mental Health Services who went
ahead and organised the conference against all the odds". It notes, on page
17, that "following the success of the Self-Harm Conference" a conference
on
"Hearing Voices" is being organised for
18.4.1990. Information
from
Alan
Leader, City and Hackney Federation of Consumers of the Mental
Health
Services, c/o City and Hackney CHC.
Self-Harm: Perspectives from
Personal Experience (1994) was a consequence of this
conference.
Crisis cards - Launched by the International Self-Advocacy Alliance
and
Survivors Speak Out in 1989, crisis cards are intended as an
advocacy device to be carried by
the person who has written it, to be used in mental health emergencies.
Crisis Cards were the invention of
Jackie Biggs (journalist) and
Mike Lawson, living at that time in Jackie's cottage in west
Wales. They called themselves the International Self-Advocacy Alliance
[Rhiadle, Llangrannog, Llandyssul, Dyfed SA44 6BG, Wales, UK - Telephone
0239 78661]. The
idea was patented and, being short of money, Mike sold it to Survivors
Speak out for about £75. (Information from Mike 31.10.2008).
Survivors Speak Out launched the card at its
Annual General Meeting.
Saturday 16.9.1989
Survivors Speak Out AGM "Sixty-five members,
including individuals from the UK, Holland, Italy and West Germany
attended". Reference made to "more than a dozen local groups".
(Asylum October 1989, p.16)
16.9.1989: Press Release: "Crisis Card Launched" made by
International Self Advocacy Alliance
October 1989 Article by Chris Halford in Voluntary Voice
explained that
Good Practices in
Mental Health (GPMH)
"now offer a
resource to mental health user groups across London"
1990
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In the United Kingdom, the 1990s saw the further development of a
recognised and professionalised user movement. There are now statutory
requirements for consultation and the providers need someone to consult
with. Some survivor groups received significant funding. (See
King's Fund support from 1985).
In
June 1990, a
relatively small grant from
what became the Sainsbury Centre helped to start the National Advocacy
Network. The substantial
(and continuing) investment of The Arts Council in the users movement began
in
1991. That of the
Mental
Health Foundation
began in
1992. See
£11,750 for Survivors Poetry in 1991,
£30,000 for Survivors Speak Out in 1992,
£50,000
for a National Advocacy Network in 1992.
£25000 for Hearing Voices Network in
1994.
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One of the main reasons for the spread of practical user involvement, as
opposed to theoretical, was the work of people from
Nottingham going around the country in the early 1990s and
supporting others to get
started. Much as the Dutch folks helped us...
(Colin Gell... email
1.8.2008)
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Early 1990s The idea of
AdvoCard is conceived by service users and research and meetings
are happening.
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"The Ex-Patients' Movement: Where We've Been and Where We're Going"
by Judi Chamberlin - (National Empowerment Center) published in
The
Journal of Mind and Behavior Volume 11, Number 3, Summer 1990 Special
Issue, Challenging the Therapeutic State, pages 323-336 is mostly about the
movement in the United States -
Link to online copy
1990
Whose Service is it Anyway? Users' views on co-ordinating community
care Edited by
Marion Beeforth - Edna Conlan - Vida Field - Brian Hoser
- and
Liz Sayce,
London:
Research and Development for Psychiatry (RDP). -
Reviewed by
Tony Whitehead
in the
Psychiatric Bulletin June 1991
Rhythm of Struggle - Song of Hope
Justice for Women began in 1990
1990
Hamlet Trust in Poland
Thursday 15.3.1990 - Friday 16.3.1990
User Involvement - The Way
Forward conference organised by
Nottingham Advocacy Group which led, eventually, to setting up
the United Kingdom Advocacy Network
(UKAN)
April 1990 Relaunch of Bristol Mind.
See website - Bristol index -
Jeff Walker -
April 2002 UFM
report -
2004 -
18.4.1990 Date for which London
Hearing Voices Conference
was
planned.
May and June 1990
Donations from
Nottingham Advocacy Group (£400)
-
Survivors Speak Out (£200) and
Research and Development in Psychiatry (£1,000) enabled
the planning group for a National Advocacy Network to meet.
Asylum Summer 1990
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June 1990 Annual Report of
Camden Mental Health Consortium
(Anne Plumb
collection) includes an example of user-professional research -
A user for Consortium devised
a simple questionnaire with a senior nurse to find out what users had been
told about medications, and what information they would like, as a
contribution to Bloomsbury Community Health Council's attempt to raise
awareness of the need for improved practice. Results (75 respondents)
"indicated much disappointment with the quality of information, and a
particular need for guidance on long term effects". Action on
recomendations had already been taken on acute wards at St. Pancras.
|
July 1990
Helen Spandler's (unpublished) paper "An attempt to analyse the
anti-psychiatry and
mental patients movements with regard to the social and political period of
the sixties". She concludes
"The mental patients movement in many ways helped pave the way
for organisations such as
Survivors Speak Out and the various "consumer networks" in
Britain. Some ex-patients and activists joined Mind local
groups and
have
helped influence them towards a more radical approach to treatment, legal
rights etc. The
most recent campaign was that against the proposed
Community Treatment Orders in
1987 (compulsory psychiatric 'treatment' in
the community)."
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Wednesday 4.7.1990 Launch of magazine
Beyond Diagnosis - The first "Summer issue"
"The Voice in Scotland of people who have been diagnosed mentally ill - and
those with related experiences". The Steering Group, John and Anne
Macdonald, Marion Donovan, Vincent Donnelly, Jeff Frew, Julia White, Jeff
Haddow and Jimmy Milroy, held a wine and cheese party at the Stafford
Centre, Edinburgh, to celebrate the launch. Also an autumn edition in 1990.
The intention was quarterly, but issue seven did not appear until 1994.
See also
Asylum Summer
1992 -
issue 6 -
January
1994 -
issue 7 -
Scottish Users Network March 1994
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August 1990 First United Kingdom People First Conference held
in Twickenham. Betty Steingold, Susan Baldwin, Susan Jennings and Elani
went from Hackney. They spent a whole week there and discussed many things.
Betty went to a conference last year, so many people knew her. Betty, an
active member of Hackney Action on Learning Difficulties (Previously
Hackney Action for Mentally Handicapped People) told the Conference,
that she did not want people to say "mental handicap". Other people spoke
about living independently and about getting jobs. Food and the
accommodation were good.
Asylum Autumn 1990
November 1990 First National
Hearing Voices Conference held in Manchester. See
Manchester index.
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Autumn 1990 issue two of
Beyond Diagnosis. Editor now Marion
Denovan, 146 Morningside Road, Edinburgh, EH10 4PX - who remained editor
for some years.
|
October 1990 Workshop on researching user involvement, Nuffield
Institute, University of Leeds. A collection based on this was edited by
Marian Barnes and Gerald Wistow (1992).
Asylum Winter 1990/1991
1991
Alan Baker 1991 "On Hearing Voices and other Phenomena" in
Libellus Dementum (issue one?). Oxford Survivors.
(Anne Plumb Collection). See
Asylum
Winter1991/1992. A letter was published in
Beyond Diagnosis 6 from Sarah Bell, OS Publishing, Oxford
Survivors, c/o
Littlemore Hospital, Oxford, OX4 4XN, She enclosed "issue 2 of
our magazine
Libellus Dementum which mentioned Beyond Diagnosis and hoped
it would mention Libellus Dementum. "Beyond Diagnosis will
shortly be made available to all members of OS in our new office".
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Brian Hartnett (in London) "Around 1991, at the same time as the
company I worked for closed and I lost my job, I started to retreat into
myself. I am not sure when I started hearing peoples voices and exhibiting
signs of ill health. It crept into my life gradually. Thoughts began to
become vocalised in my head and I began to hear voices in the babble of
conversation in crowded places."
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Sunday 6.1.1991 the Independent on Sunday published a report
by Christine Assiz, "Heard but not seen", on a
Hearing Voices conference
arranged by five mental health activists, connected to
Manchester Mind.
(Asylum Spring
1991)
Ron Coleman "Any recovery journey has a beginning, and
for me the
beginning was my meeting with Lindsay Cooke my support worker, it was her
who encouraged me to go to the hearing voices self-help group in Manchester
at the start of 1991."
(source)
April 1991 "The Mental Illness Specific Grant (MISG) was
introduced under the
NHS and Community Care Act 1990, providing from April 1991
revenue grant for the development of social care services for individuals
with mental health problems"
(external source)
2.4.1991
Wokingham and District Mind's Crisis House in Station Approach,
Wokingham, a user run crisis centre, opened by
Pam Jenkinson. -
source
Asylum Summer 1991
June 1991
Anne Rogers
and
David Pilgrim
(1991)
"'Pulling down churches': accounting
for the British mental health users' movement"
Sociology of Health and Illness 13, 2, pp 129-148 -
See Literature List. -
offline -
The authors describe
themselves as "professional commentators on, or allies of the MHUM" [Mental
Health Users Movement]. They explain that they were members of Mind and of
the
London Alliance for Mental Health Action. Between
Autumn 1988 and 1989,
they interviewed ten people (seven users, three professionals) who were
also members of the
London Alliance for Mental Health Action and/or Mind -
MindLink -
CAPO -
Survivors Speak Out -
Voices -
British Network of Alternatives to Psychiatry -
Good Practices in Mental Health -
Afro-Caribbean Mental Health Association -
Nottingham Patients Council.
6.6.1991
From the Mental Patient to the Person by
Peter Barham and Robert Hayward, Routledge -
22.6.1991 Letter from
Ingrid Barker (now Newcastle Health Authority) and Richard
Greave in the
British Medical Journal. "As part of our work
establishing contracts for mental health services, both in Newcastle and in
other places around England, we have attempted to get a range of users to
help plan and to comment on contracts".
23.8.1991
World Federation of Psychiatric Users -
First committee meeting - This was at the World Federeation for Mental
Health Congress.
Mike Lawson attended the congress as Vice-Chair of Mind, but was
not minuted as attending tthe users meeting
28.8.1991 Orville Blackwood, aged 31, died after being given
injection of calming drugs in a secure unit at Broadmoor. See
26.8.1994.
September 1991:
Louise Pembroke (for
Survivors Speak Out) organised an Eating Distress conference.
The Eating Distress booklet published by Survivors Speak Out came out
of that. (Louise Roxanne Pembroke (editor) Eating Distress -
Perspectives from Personal Experience. Conference Papers. Survivors
Speak Out 1992 (1st edition) - 1993 (2nd edition. 23 main pages) - 1994
(Revised and reprinted edition). ISBN: 1898002002 (paperback) -
COPAC lists copies in several libraries.
27.10.1991
European Network of those Affected by Psychiatry.
[Europäisches
Netzwerk von Psychiatrie-betroffenen] formed in Amsterdam. (Press Release
12.11.1991 -
exernal link in German) -
This evolved into the
European Network of (ex-) Users and
Survivors of Psychiatry
November? 1991 Second National
Hearing Voices Conference held in
Manchester
November? 1991
Distress Awareness Training Agency (DATA) applied for further
DETAF funding to host a "Training the Trainers" event. Initially scheduled
for
Autumn 1992, it was delayed to
29.5.1993 whilst DATA obtained further
support from Rochdale Council's Equal Opportunities and Central Training
sections.
By the early 1990s,
CAPO was no longer in existence
|
Survivor's
Poetry
November 1991 Survivors Poetry founded 'to foster and promote
poetry workshops and performances for and by survivors of the mental health
system'. 16.11.1991 Survivors' Poetry event with: Ferenc Aszmann (MC
Poet) - Paulette Ng (Poet) - Raz and Sam (Music/poetry duo) - Peter
Campbell (Poet) - Pauline Brady (Singer)
(source)
- See also
Poetry index
Survivors Poetry was Arts Council funded. It received £11,750 from
Disability Projects for the financial year 1991/1992, There was no grant in
1992/1993, but from 1993/1994 there was continuous funding apart from the
crisis year of 2006/2007
On Our Own Terms
2003 Table 4
says "1991 Emergence of networks and groups for survivor art, poetry and
drama: A major network is Survivors' Poetry, which runs workshops and
performances, and publishes collections of survivor poetry."
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Asylum Autumn 1991
Asylum Winter 1991/1992
1992
On Our Own Terms 2003 Table
4
dates (some?) user-run services from 1992. It says user-run
drop-ins were established, including McMurphys in Sheffield and
Brixton Community Sanctuary in Lambeth. - Brixton Community
Sanctuary and Lambeth Community Fourum were projects
closely associated with
Alan Leader
"By 1992 more than a hundred local survivor groups had
come into being, stimulated by the
1990 NHS and Community Care Act and the
introduction of
Mental Illness Specific Grant (MISG) in 1991. These groups
became linked up through the creation in 1992 of the
United Kingdom Advocacy Network (UKAN)"
(A4MHD
history)
Department of Health consultation document Inspecting Social Services
(1992) said
"There is a valuable and up to now under-recognised role [in
inspection] for people who actually use the services, those close to them
and able to speak for their interests, and for other lay people" [Lay
Assessors]"
In 1992,
Clare Ockwell oversaw the merger of the
Society for the Advancement of Research into Anorexia
(SARA) into the Eating Disorders Association.
Nigel Rose
Romme
and Escher : the Dutch experience : an
examination of the research and development work on voice hearing in the
Netherlands. Manchester : National Hearing Voices Network, 1992.
14 pages/
|
Paul Monks, a local artist, used an abandoned ward at
Hackney Hospital as his studio. With limited
funding, an open studio was created. "Several successful exhibitions later,
Core Arts was officially born, gaining charitable status in 1994."
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The first Scottish Users Conference was held in 1992. The
second was held in
November 1993.
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East Lothian Involvement Group ("Our voice on mental health
services") formed 1992 with funding from
CAPS (Consultation and Advocacy
Promotion Service). The group had guest speakers from East
Lothian Mental Health Forum, Disability Scotland and others) and took part
in consultation processes including curriculum planning for Mental Health
Nurse students at Napier University, Edinburgh. It became an independent
group on
1.4.2000 - See
new website 2008
|
International Journal of Social Psychiatry, Vol. 38, No. 1, 30-35
(1992) "Changes ? What Changes? The Views of the European Patients'
Movement" by Ed Van Hoorn -
Clients' Union in Mental Health Care, The Netherlands
"People on the receiving end of mental health services have an
increasingly important role to play in the transformation of mental health
care. It is argued that user involvement in itself does not guarantee a
good outcome, but we need to take the views of (ex-)patients seriously
without trying to fit them into theories. Dealing with the, often
uncomfortable, relationship between patients and mental health
professionals, and that between patients and relatives' organisations, two
main strands in the European patients' movement are identified: those who
seek to abolish psychiatry (abolitionists) and those who seek to reform it
(reformists)."
(source)
9.4.1992 to 11.4.1992 A London conference of the National Schizophrenia
Fellowship, organised by Pam Jenkinson, included Judi Chamberlin, Rae and
Jim Ouziker from the USA and Peter Campbell from London.
Anne Plumb and Andrew Roberts involved on the sidelines.
Friday 10.4.1992 Andrew Roberts' diary: Met
Peter Campbell. Went
with
Judi Chamberlin,
Rae and Jim Ouziker,
Peter Breggin and
David Cohen to an organ recital by Dewi M. Lewis at St
Margaret's Church, Westminster. Heard Jackie Etheridge
sing "I know that my Redeemer Liveth" (7.30-8.30pm).
Afterwards to an Italian Restaurant in Greek Street,
where we may have been when the IRA bomb went off
(9.20pm) in
the City of London.
Asylum Spring 1992
|
MINDWAVES Summer 1992, pages 8 and 14:
National Networks
Survivors Speak Out were recently given £30,000 by the
Mental
Health Foundation towards employing a worker. Their main
activities at the
moment include looking for an office base in London and producing the
updated Self-Advocacy Pack which it is hoped will be ready for the
Mind
conference in November. Survivors Speak Out's Annual General Meeting will
be on Saturday 31.10.1992 at Hampden Community Centre, Ossulston Street,
Euston. Details from Peter Campbell (home postal address).
National Advocacy Network Additional funding of £50,000 has
been received from the
Mental
Health Foundation. The National Advocacy
Network is also looking for an office. Elections to the first management
Commitee are proceeding apace, and an
inaugural General Meeting will be held on 29.9.1992 at the ICC
Nottingham
|
Asylum Summer 1992
July 1992
Survivor's Poetry - From Dark to Night, an anthology
edited by
Frank Bangay,
Hilary Porter and Joe Bidder, was the first publication of the
Survivors Press (London). 124 pages. ISBN: 1874595003
(paperback). A copy in the
British Library is the only one listed on COPAC. - See
Mixed Emotions
|
|
August 1992 MAD premiered at the Edinburgh Festival Fringe.
Written and directed by Jeremy Weller. The play was based on the
experiences of and acted by eight women who had suffered mental health
problems. MAD was covered by the BBC's Late Show and Channel 4 News. Won a
Scotsman Fringe Award and Evening News Award
|
Asylum Autumn 1992
18.9.1992 to 20.9.1992
"Psychiatries' Presumptions: European Philosophy and Psychiatry".
Conference organized jointly by the University of Sheffield Department of
Philosophy, the Section of ... Sheffield. Reported in
Asylum Winter 1992/1993 and
Spring 1993
[May gave been jointly organised with The Royal College of Psychiatrist's
Philosophy Group] Followed by "fat cats" correspondence in Asylum
1 1994 and 2 1994
Tuesday 29.9.1992
Inaugural General Meeting of the National
Advocacy Network
November? 1992 Third National
Hearing Voices Conference.
Autumn 1992 or later A "Training the Trainers" event in Nottingham,
jointly organised by
UKAN -
MindLink - and
Nottingham Patients Council. This, and the DATA event in
May 1993, were very early examples of service user
Training the Trainers events.
|
... a Mental Health User Task Force
organised 11 events at which over 1,000 service users got their first
introduction to the possibilities of being involved.
(Colin Gell... email
1.8.2008)
|
The Government set up a
Mental Health Task Force in September 1992
to help
build up a balanced range of locally based services. The full membership of
the group and its support groups was still being finalised in January
1993
On Our Own Terms 2003 Table
4
says "1992-
1994
Mental Health Task Force Service User Group (part of
Department
of Health's Mental
Health Task Force) set up. Produced publications: guidelines for service
user charters and
advocacy, ran a series of regional service user conferences and Training
the Trainers events."
Anne Plumb: The User Group had three representatives each from
Survivors Speak Out, the
United Kingdom Advocacy Network and
Mind Link; with the brief
of preparing publications on Guidelines for a
local Charter for users of a mental health service; Advocacy - a code of
practice; and Building on experience, a training pack for mental health
service users working as trainers, speakers and workshop facilitators.
The Charter working group was
Marion Beeforth,
Colin Gell,
Jim Read and
Jan Wallcraft
- The Advocacy working group was
Edna Conlan, Colin
Gell,
Roberta Graley, Ian Mooney and Tony Day - The Training working
group was Roberta Graley,
Mary Nettle
and Jan Wallcraft. See
19.10.1992 -
29.4.1993
|
10.10.1992 "World Mental Health Day 1992 was a
turning point for mental health service users, when representatives of
three national groups, Mindlink, Survivors Speak Out and the United
Kingdom Advocacy Network (UKAN) met the then Secretary of State for
Health,
Virginia Bottomley"
19.10.1992 Minutes of a meeting on or about the
Mental Health Task Force Service User Group
Asylum Winter 1992/1993
1993
Leeds Mental Health Advocacy Group started 1993 -
External link to its history and the history of advocacy
Stopovers on my way home from mars. Reflective journey through the
psychiatric survivor movement in the USA, Britain and the Netherlands
by
Mary O'Hagan.
IT! Poems by Paulette NG copyright 1993. A tape in Thurstine
Basset's collection. Paulette NG was a member of
Survivors Poetry
|
Beyond Diagnosis, c/o
CAPS, The Engine Shed, 19 St Leonard's Lane, Edinburgh, EH8
9SD
|
1993? Beyond
Diagnosis issue six produced after an "extremely lengthy
delay". It included a letter about Libellus Dementum (Oxford, England) (p. ) -
a "Self help" article about
Express Group (Fife), which focused on a
theatrical performance at its Annual General Meeting in May 1992 (pages 10-
11) - A personal account of mental illness by Carolyn Raeburn, one of the
actrors in
Mad at the Edinburgh Festival Fringe in August 1992.
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Begining of 1993 City and Hackney Mind Advocacy Service established
at Hackney Hospital. Coodinator:
Robert Dellar
1993 Open Society Institute founded by George Soros in New York.
Peter Barham sent him a letter which eventually led to
substantial funding for Hamlet Trust work in central and eastern Europe.
5.1.1993
Joan Hughes' diary: "One hour phone-in on Community Care on
Radio Four. Only five minutes devoted to calls from ex-patients living in
the community - and 55 minutes devoted to calls from relatives and
professionals. Emphasis is always on the worst cases."
29.1.1993 Letter from
Virginia Bottomley to Peter Campbell,
responding to a letter of 7.1.1993. "I very much appreciated meeting last
month with you and the Chairs of the other two organisations. It is so
important that mentally distressed people are actively involved both in
their own treatment plans and in the development of mental health
services." "I know that both
Mrs Conlan and
Ms Haywood are in contact with
officials and that you are all involved in the
Mental Health Task Force Support Group."
|
Community Care Support Force
February 1993 Two day event "when people from five local areas
(professionals and service users) came together to discuss their progress
so far in developing assessment and care management and how user
participation could be promoted."
26.2.1993 Participants at meeting: Pam Barette: Power House - Nasa
Begum - Blodwen Brewster: Community Care Support Force - Brian
Brianstocker: People First - Jane Campbell: British Council of
Organisations of Disabled People - Alice Ethrington: People First - John
Evans: British Council of Organisations of Disabled people - Phil Friend -
Roberta Grayley: UK Advocacy Network (UKAN) - Millee Hill: Black Disabled
People Group (Action) - Michael Jeewa: Asian people with Disabilities
Alliance - Cheryl King: Power House: Facilitator - Viv Lindow: Community
Care Support Force - Lucille Lusk: British Council of Organisations of
Disabled People - Sandra Martin: People First: Facilitator - Narendra
Mehta: Apna Ghar Housing Association - Jenny Morris: Consultant and meeting
chair - Andy Smith: Survivors Speak out - Albert Thompson: British Deaf
Association and Deaf Services Participation Project.
31.3.1993 User Participation in Community Care Services - A
series of documents prepared by Jenny Morris and Vivien Lindow on behalf of
the Community Care Support Force
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March 1993
Peter Breggin visited the United Kingdom. He
"did a conference in Bristol with
Lucy Johnstone" which Peter Campbell was
supposed to attend, but did not, and "spoke at an event organised by
Hackney Mind", which is where Peter Cambell heard him. (email Peter
Campbell 31.7.2009). At some time, a Peter Breggin/David Cohen Conference
was organised in London by
Pam Jenkinson (Anne
Plumb emails)
Asylum Spring 1993
April 1993 Short article in Hackney Gazette said someone
(City and Hackney Mind?) was looking for volunteers who had used
psychiatric services to work in Hackney Hospital.
Terry Conway read and responded. This role led to
Hackney Patients
Council
April 1993 Mission statement of the (USA)
National Association of
Consumer/Survivor Mental Health Administrators (NAC/SMHA) which
"represents state mental health department senior managers who are current
or former recipients of mental health services".
archive
29.4.1993 Meeting of
Mental Health Task Force Service User Group
at which
David King explained the objectives, and
users listed their concerns. Jan Wallcraft
wrote a memorandum
29.5.1993 and 30.5.1993
Distress Awareness Training Agency (DATA) "Training the
Trainers" two day event.
Mary Nettle, who had recently become a full-time user
consultant, delivered part of the programme. Sarah Berry, then at North
West Mind, helped with pre-publicity. One of the trainees, Munir Lalani, is
a current member of DATA.
First half of 1993
Experiencing Psychiatry: User's Views of
Services by Anne
Rogers,
David Pilgrim and Ron Lacey. Based on evidence from a survey of
the views of 500 users of psychiatric services. Macmillan in association
with Mind. 205 pages.
Asylum Summer 1993
27.8.1993 "Terms of Reference of the
Voices Forum National Committee". National Schizophrenic
Fellowship.
(Anne Plumb collection).
28.7.1993 Meeting of the Charter Group (of the
Mental Health Task Force Service User Group) at Richmond House.
Terry Simpson says
"There seemed at the time something very symbolic in survivors meeting at
the heart of the Department of Health, at Richmond House". He still has the
early draft of the Charter that was discussed at the meeting.
Asylum Autumn 1993: "All Survivor
Issue. Diana Her Survivor Story".
"I had to more or less drop out of
DATA
by late 1993 through domestic commitments".
(Anne Plumb)
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The second
Scottish Users Conference was held in
November 1993. The theme was community care. Workshops were held to
determine gaps in services and to prioritise real needs as identified by
users. Tishe Shaw spoke on black and ethnic minority issues and Maria Fyfe
MP was the other speaker. A report was published in March 1994.
|
November? 1993 Fourth National
Hearing Voices Conference.
December 1993 - March 1994 Survivors' Poetry UK tour:
Manchester, Leeds, Liverpool,
Bristol,
Wolverhampton
(source)
Late 1993 Hearing Voices Newsletter no 10. Editorial
Nigel Rose Groups continuing to grow. Some survive only a short
while, some go from strength to strength. Hearing Voices Network National
Office (Manchester). Groups - Manchester, Liverpool, North Wales,
Kirkcaldy, Edinburgh, Wakefield, Oxford, South London, North London.
1994
Advocacy Information Pack published by
Good Practices in
Mental Health
in 1994. A copy in the British Library is the only one listed on
COPAC.
Wolf Howls [poems] by Paulette NG. copyright 1994. A tape in
Thurstine Basset's collection.
1994 Carol Jenkin started BUDDIES and
Pat Butterfield started ECT Anon. "...if it hadn't
been for the support we both gave each other, we couldn't have made it
through the negativity
being aimed towards us at our development stages." (Carol Jenkin, email
6.8.2008)
Buddies is a Mental Health Support Network and
Befriending Scheme (Black/multi-cultural with mental health issues is its
focus) which was originally based in Bradford, but has now moved to
Manchester where the city seems to support it and want it. (Carol Jenkin
17.9.2008)
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1994 Paddy
McGowan
established a mental health service users group in Ireland.
|
1994 "When I"
[Alison Faulkner] "first arrived at the
Foundation in 1994, June
McKerrow (the then chief executive) said: "Let's do some research that is
user-patient led". I was well connected with service users so got together
different people from user organisations such as
Speak Out and the
UK Advocacy Network as well as
Mind Link and the Brent user group, who had
done so much work involving members of the whole community. We also had
people from the
African-Caribbean Mental Health Association -
We designed
the questionnaire by committee and I did all the work in-between."
(Alison
Faulkner
2.2009)
- This led to
Knowing Our Own Minds
1994 Awaaz users group was set up in 1994 with the support and help
of Having a
Voice. Source
website. Hanif Bobat sometime Development
Director of the "national charity group" AWAAZ.
1994 Self-help alternatives to mental health services by
Vivien Lindow 78 pages
ISBN: 1874690219 and Purchasing mental health services: self-help
alternatives by Vivien Lindow, 33 pages, ISBN: 1874690227, published
by Mind. 76 pages.
|
|
January 1994 The editorial team of Beyond
Diagnosis began to meet again. "We spoke about the
possibility of a relaunch and in the meantime... got on with producing
another issue"
|
February 1994 Hearing Voices Newsletter no 11. Editorial
Nigel Rose
March 1994
Hackney Patients' Council founded. The founders were
Robert Dellar (coordinator for the City and Hackney Mind
advocacy team, whose office was on the ground floor of F Block) -
Terry Conway, social worker - Deb Percy, retired psychiatric
nurse - Earil Hunter, ex-patient - and Debbie MacNamara ex-patient.
(Robert, Terry and Debbie have articles in Mad Pride 2000.
At this time, there were only two other patients councils in the country
known to the group. The founders made a grant application to the health
authority and gained temporary funding for three months. At the end of the
three months, Hackney Patients Council was offered an annual grant of
£30,000 on condition that certain targets were met and certain pre-
requisites honoured.
for predecessors in Hackney Hospital -
see above - See below
2001
1.3.1994 Have We Got Views for You - User Evaluation of Case
Management by
Marion Beeforth -
Edna Conlan - and
Roberta Graley.
Sainsbury Centre for Mental Health.
13.4.1994 Accepting Voices. Understanding the Voice Hearing
Experience Brixton - The Hearing Voices Network.
(Asylum 1
1994). This was the first Hearing Voices conference to be aimed
at psychiatrists and mental health professionals. Speakers included
Marius Romme
and
Sondra Escher -
Consultant psychiatrist Philip Thomas (University of Wales) on The British
Experience; Clinical psychologist Gillian Haddock (University of
Manchester) who developed the 'focusing' approach to coping with hearing
voices on Psychological Therapies;
Alan Leader, Helen Heap
(chair HVN),
Anne Walton on the HVN (aims, objectives, work) and
Ron Coleman
from HVN on
coping with the experience.
27.4.1994 "Forging Our Futures" conference at
the Forte Crest Hotel on Manchester Road in Sheffield
-
part of the
Mental Health Task Force process - Organised by
Roberta Graley and
Terry Simpson of
UKAN
May 1994 Hearing Voices Newsletter no 12. Karina Carlyn, voice
hearer takes job as editor from
Nigel Rose. "We thought it was time that a voice hearer took
over the job as editor. There is a wind of change blowing through the whole
of the Hearing Voices network and we voice hearers are taking on more and
more responsibilities in the running of our organisation at every level. We
believe it is time we were in control of our destiny."
Funding of £25000 received from
Mental Health Foundation.
May 1994 Ron
Coleman
(Manchester HVN) and
Alan Leader
(South London HVN) attending conference in Maastricht organised by
Foundation Resonance
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27.5.1994 Annual General Meeeting of the
Lothian Users
Forum. Issue 7 of
Beyond
Diagnosis reports. Groups mentioned include "E.A.M.H." -
MIND -
Lothian Mental Health Forum -
CAPS
-
the Patients Council - Sprout -
UKAN -
Awareness -
John Macdonald
said that UKAN "seems to have no representatives from Scotland" [John
MacDonald was on the UKAN board for several years as a Scottish
representative - Two UKAN tresurers were from Scotland and for many years
UKANs links with Scotland were strong. (Terry Simpson 2.6.2009)
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June 1994 "Forging Our Futures" conference at
Manchester Airport
-
part of the
Mental Health Task Force process. Andrew Hughes outlined
history of the
Distress Awareness Training Agency (DATA) (as since reused on
this web page). "A volunteer scribe from the audience that day,
Caroline Hellewell, is now DATA's most senior member". (Andrew Hughes -
former coordinator and treasurer DATA)
2.7.1994 Founding conference of
Psychology, Politics, Resistance
(Asylum 2
1994)
"Psychology Politics Resistance was founded in 1994 as a
network of people who are prepared to oppose the abusive uses of
psychology. Members of PPR in different places have organised meetings and
have been involved in a number of different campaigns. The purpose of PPR
is not to duplicate or replace but to network the many different groups and
individuals who have already been organising. Now our newsletter is
incorporated in Asylum magazine"
(discourse unit website)
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Beyond Diagnosis c/o CAPS, 5 Cadzoow Place, Edinburgh, EH7
5SN
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Summer 1994? issue 7 of Beyond
Diagnosis - "I'll stick my neck out here and say that issue
8 should be out before the end of the year"
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August 1994 Hearing Voices Newsletter no 13.
26.8.1994
Orville Blackwood Community Campaign "In memory of all those who
have not survived psychiatry". A picket of survivors to be held outside the
Royal College of Psychiatry... 11am to 1pm.
November 1994 Appointment of Hackney Patient Council workers: Eileen
Philip - Julie Hathaway - Phil Murphy - and Andy Martin (the present
coordinator)
November? 1994 Fifth National
Hearing Voices Conference.
November 1994 Judith Morgan-Freer, another user, elected vice-chair
of Mind, in place of
Mike Lawson. Mike had been asked to step down by Tim Durkin
(retiring chair) who had proposed Judith Morgan-Freer as Mike's
replacement. Judith served for one year and was succeded by another user,
Lisa Haywood.
3.11.1994 and 4.11.1994 Conference of the British Medical
Association on Core Values for the Medical Profession in the 21st Century.
"recognising that paternalism is no longer an appropriate model
for the doctor-patient relationship... argued that the relationship should
be a 'partnership of mutual trust' in which doctors should encourage
patients to help decide treatment and care."
(Mike Crawford, March
2001)
29.11.1994 and 30.11.1994 Conference "Forging our Futures"
held at Derby by the
Mental Health Task Force User Group to mark the
culmination of their work. A transcript was published in 1995
Forging Our Futures: Lighting the Fire. London: Mental Health Task
Force User Group - Conference proceedings, discussing work of the mental
health task force user group. Details examples of user involvement in
service planning and
delivery.
On Our Own Terms 2003
Table
4
says: "1994: National Service User Conference in Derby, attended by over
200
service users representing the movement, endorses national charter and
publications."
December 1994 Launch of Schizophrenia Media
Agency, c/o
Hearing Voices Network, 1st Floor, Fourways House, 16 Tariff St, Manchester
M1 2FN. Tel: 061-228 3896.
Health Matters Feature. See
Manchester index.
1995
Kathryn Church:
Forbidden narratives : critical autobiography as social
science published. Republished 2003. 160 pages -
(Google books extracts) - "about her personal
involvement with the
user movement - and how it resonated with her own experiences of women's
oppression and also her own experience of physical/mental breakdown" (Helen
Spandler)
1995 Start of
Having a Voice
(Manchester)
February/March 1995
Louise Pembroke
"National self-harm network" in
OpenMind
73, page 13.
Is the Writing on the Asylum Wall? by
Ron Coleman
published under
the imprint of his "Action Consultancy and Training (ACT)" in 1995. Other
publications followed under the same imprint: Celtic Madness -
The Voice Inside and Killing Me Softly.
Ron Coleman
and Andy
Gilbert formed Handsell Publishing in 1997. Handsell organised a conference
to mark ten years of the Hearing Voices Network in
1998 and then conferences on
"Recovery" in
1999 -
2000 -
2001
Asylum Spring 1995
April 1995
Under the Asylum Tree - 15.4.1995 Survivors Poetry
150 Ossulston Street, Special Anthology Launch
April 1995
BBC Horizon programme for and about people who hear voices. Many
more people contacting the
Hearing Voices Network.
10.5.1995 Beautiful Octopus Club, The Albany, Deptford, SE8,
launched by
Heart 'n Soul - 'the first cabaret club to open in London to
give expression to the culture of learning disabled people'.
(source)
Asylum Summer 1995
July 1995 National Conference in Manchester that was the culmination
of
Helen Spandler's research at
42nd Street into the needs and experiences of young people who
attempt suicide or self-harm.
August 1995 Survivors Poetry Scotland launched as part of the Out of
Sight - Out of Mind Exhibition at Kelvingrove Art Gallery (Glasgow). - See
Sweet Sourand
Serious (1996)
November? 1995 Sixth National
Hearing Voices Conference.
November 1995 Lisa
Haywood elected vice-chair of Mind. She served until 2006.
Two
Survivors Speak Out information sheets by Adina Halpern,
solicitor, were published in 1995: "The Survivors Speak Out Crisis Card"
and "Advance Directives".
(Anne Plumb collection). - See
Mind Advice on Advance Directives
Five or six years after the launch of
crisis cards at the Survivors Speak Out AGM in 1989, Peter
Campbell recalls someone from Mind coming to Survivors Speak Out and saying
"Mind are not interested in the idea of Advance Directives - Will you take
it up?"
Alan Leader
(1995) Direct Power: A Resource Pack for People Who Want to Develop
Their Own Care Plans and Support Networks. London: Brixton Community
Sanctuary, Pavilion Publishing and Mind
On Our Own Terms 2003 Table
4
says: "1995-present Service users/survivors as workers:
Employment campaigns and programmes are developed by service users,
including
EcoWorks
in Nottingham, and service user employment programme to
support service users to find work within the South West London and St
George's NHS Trust."
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Internet: "The only way I knew there was any survivors activism was
by finding the
online Madness list in the US in 1996. There were only 3 of us
from the UK on the list and I kept wishing we had a UK movement like them.
I didn't know about you guys. So historically speaking
the internet has made a big change in the ways we can
communicate."
Jill Goble
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In 1996 Peter Relton became
Service User Development Worker with the new "Bradford
Home
Treatment Service". He says he was "the first service user in the UK
employed to provide a user perspective within a team of mental heath
professionals". He also speaks of "post-psychiatry, which has its origins
in the work pioneered by the Bradford Home Treatment Service."
(external source)
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Southwark Mind
(website)
"We have been a pioneering and
radical group since 1996" (Denise Mckenna).
Pete Shaughnessy one of Southwark Mind's
original user members and was its first chair. Denise Mckenna joined
acouple of months later in 1996 and they became co-chairs.
Southwark Mind had been almost user led
for about a year before the 1997 AGM - with the enabling help of Anna
Carver of the Independent Advocacy Service -
and we had all been working towards it becoming fully user led for some
time. There was no opposition to it becoming user led. (Denise Mckenna)
Besides being involved in Southwark Mind, Pete was involved in many other
user activities, some of which involved users from Southwark Mind, but many
were distinct from Southwark Mind. (Denise Mckenna) See
Reclaim Bedlam
24.8.1997 Southwark Mind AGM that converted it into a user run
group.
[The following is misleading in at least two respects: Pete Shaughnessy,
with the help of Denise Mckenna, "carved up" the 1997 Annual General
Meeting of Southwark Mind, turning it into a user-lead charity. This led to
Robert Dellar being
appointed as a development worker "to take ideas forward including Pete's"
(source)]
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And the World Really Had Changed (ISBN: 1901045005)
published by Leeds Survivor Poets. LSP Press, Leeds, 1996.
Paperback.
25 Cms x 18 Cms. 135 pages, 99 poems written by members of The Leeds
Survivors' Poetry group, who describe themselves as survivors of "mental
health system involvement". The poetry varies from humorous to touching to
painful, and is the first anthology by this group.
Sharon Lefevre, Killing me Softly. Self harm, survival not suicide
Gloucester:
Handsell Publishing, 1996. 95 pages. ISBN: 1903199069
1996 Perspectives on Manic Depression - A Survey of the
Manic Depression
Fellowship, by Robert Gareth Hill, Pollyanna Hardy and Geoff
Shepherd
The Sainsbury Centre for Mental Health, -
external download -
offline - The most recent leaflet was one on
the self-management of manic-depression. This concept was picked up by the
Self Harm
Network and
Voices
about 1996 that Tina Coldham walked out of her psychiatrist's room
thinking "Is this all there is?" A local charity helped her set up and run
a self-help group, which she did for eight years. About 1999 she began
working as a Mental Health User Consultant/Trainer. She coordinated user
evaluations of a city centre day centre (2000), mental health day services
in the rural areas of South Winchester, and a hybrid service (CAB,
Advocacy, Housing, and legal advice) in an inpatient setting (2001). She
was elected to the
Mind Link National Advisory
Panel in 2003 and is vice-chair of the
National Survivor User Network
1996 [Daniel] Kofi Sunu became Head of Supported Housing and Care
Services, Kush Housing Association, Hackney. About 1997 Kush Housing
established the Nile Centre, a mental health crisis centre for people of
African and Afro-Caribbean origin, living in Hackney. This aim to reduce
the number admitted to hospital as schizophrenic.
[BBC link]. About ten years later, Kofi Sunu helped to start
Haywood
Consultancy"
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Aya or fern is a symbol of endurance and resourcefulness. In 1996,
Hammersmith and Fulham Black User Group (Hand f Bugs) chose this symbol
"because we thought it was apt for the experience of the members of the
group". (website)
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Tower Hamlets African and Caribbean Mental Health Organisation (THACMHO)
was established in 1996. Its projects include "The Health Through
History
Initiative". One of its symbols is Tabono representing strength, confidence
and
perseverence. Another is the Sankofa bird that flys forward while looking
backward with an egg in its mouth. The egg symbolizes the future. We must
go back and reclaim our past so we can move forward; so we understand why
and how we came to be who we are today.
website
|
See 2000 -
2001 -
2004 -
2005 -
30.10.2009 -
19.3.2010 -
14.7.2010
|
1996 Black Women's Mental Health Project set up: "Two women - Mary
Ampah and Hyacinth Dapaa - set up the group. They registered the name as a
company. All they had, when I joined them in 1996, was one community room
in Stonebridge, which they were given, plus four chairs which they provided
themselves." - [Currently] "We are at Park Royal Business Centre in
Harlesden... We have proved over and over again that The Black Womens'
Mental Health Project is a beneficial, valuable addition to community
welfare in Brent."
(Angela Linton-Abulu contact person March 2003) -
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1996
Brian Hartnett returned home to Limerick, where a doctor
diagnosed him as schizophrenic. "For the first time ever I realised that
everything going on in my head could possibly be attributed to an illness
and that this illness might be treatable". "When he said he could prescribe
medication that would stop this nightmare, a glimmer of hope appeared on
the horizon. I was worried though about what this drug, would do to me.
Would it turn me into a vegetable, would I be sedated to a state of
numbness. He reassured me by saying it was a relatively new drug and that
it was the best thing for me. He mentioned hospital saying I could go there
but I agreed to be treated as an out patient under my parents supervision.
He also gave me a prescription for side effects." "The effect of the
medication was to subdue the voices and delusions to a state where I could
function to a relatively normal degree, but I found that I also had to be
careful to avoid stressful situations. I had to eat, sleep and exercise on
a regular basis. I also had to take the medication twice a day every day.
If I didn't look after myself in this way the voices and delusions would
rise up and start to interfere in my life again."
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January 1996
"Some Points to Consider when Putting your Crisis Card into Use" Survivors
Speak Out Information sheet.
(Anne Plumb collection).
February 1996
The UK Federation of Smaller Mental Health Agencies -
"Representing the Unrepresented"
formed as a result of a Forum organised by
the
Matthew Trust in the House of Lords in February 1996.
Founder and President
Peter Thompson.
More than
120 representatives of 86 agencies attended and agreed that the Federation
should be formed. As many again wrote in with support after that meeting.
The Federation is a Company limited by Guarantee (number 3236769). It is
a membership-based Charity (number 1058342) set up to support its locally
based and independent Members who develop and provide mental health
services in their community. At its peak it had 250 voting and associate
members, representing more than 150,000 service users.
Federation website. Not updated since November 2005 but the
Federation may still be active. The Trust Deed of
The O'Hara Trust (On the Side), a family charity which supports
the Federation, is dated 21.3.1997. "On The Side is a charity which mainly
supports the efforts of small user-led mental health groups."
March 1996 Pembrokeshire Hearing Voices Group (Grwp Clywed Lleisiau
Sir Benfro formed. Between April 1998 and March 2000 the group produced
a monthly newsletter (edited by Hywel Davies). These were later bound as
Hearing and Belonging. The Newsletter Pack 2000. Hywel also produced
Hearing Voices: An Information Pack in 1998 and the Mental Health
Factfile (Ffeil Ffeithiau Iechyd Meddwl).
April 1996
Robert Dellar's
Gobbing, Pogoing and Gratuitous Bad Language!: An Anthology of Punk
Short Stories published by Spare Change Books.
4.4.1996 Launch of Brixton Community Sanctuary Anthology, by
Survivors Poetry at
Diorama. (source).
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June 1996 Highland Users Group (HUG) established.
See website
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Summer? 1996 Press launch of
Helen Spandler's
Who's Hurting Who? Young people, self-harm and suicide.
"During that launch, a story was touted around the tabloid press with the
headline 'voluntary sector encourages people to self harm', and a
psychiatrist, on local television, indicated that we were out of our depth.
Following this publicity, we also learnt that some services mistakenly
believed that 42nd Street had 'cutting rooms.' Accepting that self harm may
be 'functional' for some young people at particular times in their lives
did not mean that we actively endorsed or encouraged self harm, nor
provided places where young people could 'cut up'. Despite these
misunderstandings and attempts to undermine our work, we knew from our
experience that young people responded positively to a less controlling
approach." (42nd Street Forward to
Spandler and Warner 2007)
October 1996 launch of the Millennium Awards scheme by the
Millennium Commission. The Millennium Commission was set up under the
National Lottery Act of 1993. It met between February 1994 and November
2006. Millennium Awards were small (typically about £2000) grants to
individual people for projects which benefited themselves and their
community. They were administered by charities, including Mind. Mind
Millennium Awards made 514 awards from a total grant of £1,011,629 -
See weblink. Awards made included to
Jason
Pegler - Andrew Hughes -
Peter Munn
10.10.1996 Sweet, Sour and Serious: illustrated anthology
Survivors' Poetry
Scotland.
Glasgow: Survivors' Press Scotland, 1996. 136 pages. 22 cm.
Includes portraits. Includes indexes. ISBN: 095291400X. Launched on World
Mental Health Day, which was also National Poetry Day.
COPAC lists two copies: One in the National Library of Scotland
and the other in Bristol.
15.11.1996 and 16.11.1996 Seventh? Eighth? National
Hearing Voices Conference. Who Owns Voices, Who Owns
Psychosis. Language in Crisis. Birmingham. Hearing Voices Network in
association with
Action Consultancy and Training. Speakers included Phil Barker,
Richard Bentall, Lisa Blackman, Thomas Bock,
Judi Chamberlin,
Ron Coleman, Jenny Day,
Sondra Escher, Gill
Haddock, Sharon Le
Fevre,
Loren Mosher, Ian Parker, Eoro Riikonen,
Marius Romme, S P Sashideran, Tholene Sodi, Phil Thomas, Sara
Vatsala.
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1997 is remembered for iconic collaborations and conflicts in survivor
culture which continue to provide foci for debate. The year began
peacefully with a lottery grant to "document and disseminate people's
strategies for living with mental health problems". This helped fund the
Big Alternative
conferences from March 1998. Collaborative events coinciding with the 750th
anniversary of Bethlem included
The Bethlem Gallery "for artists who have
experienced mental health problems" and
Beyond Bedlam: Poems written out of Mental Distress. But
the celebrations also engendered cultural conflict in the
Reclaim Bedlam campaign,
eventually leading to Mad Pride. Reflecting on these events, Peter
Beresford argued
(Summer 1998) "If
mental health service users/survivors are to take charge of our future,
then we must also regain control of our past"
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Kathryn Church: Because of where we've been : the business behind the
business of psychiatric survivor economic development published
Toronto?. 40 pages. "Written for the Ontario Council of Alternative
Business in partnership with 761 Community Development Corporation."
On Our Own Terms 2003 Table
4
says: "1997-present Service user/survivor-led innovations for self-managing
mental health problems are
developed by service users/survivors: Service user/survivor-led crisis
projects emerge in Devon, Brighton, Birmingham, London,
Wokingham, Corby, Leeds and elsewhere.
Advance directives are developed as
means of
ensuring choice of treatment in crisis.
Manic Depression Fellowship
develops
self management programme. The
Strategies for Living project runs annual 'Big Alternative'
conferences,
[from March 1998] which become the focus for service
user/survivor-led
alternatives."
The Afiya Trust was established as a charity in 1997
website
INTERVOICE, the International Network for Training, Educcation
and Research into
Hearing Voices, was established 1n 1997.
(website)
1997 Skallagrigg House opened in Birmingham, with funding from the
Mental Health Foundation's crisis programme. Later, in diferrent premises,
it was called Anam Cara (Celtic for 'soul friend').
A crisis house run by "C.H.A.N.G.E." to provide an alternatives to
acute hospital inpatient admission. All staff had experienced their own
mental health crises. Only staffed during the day (weekdays) and limited
support at weekends. Piers Allott is described as the "main developer".
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February 1997
Alison Faulkner,
Knowing Our Own Minds -
Users Views of Alternative and Complementary Treatments in Mental
Health,
Mental Health Foundation
Why do you think Knowing Our Own Minds was important?
"The Foundation was making a transition away from being a committee-led
organisation funding doctors, so it was a way of trying to change the
emphasis and say: "It's all very well what research says about what's
effective but what do we find helpful, what do we think about these
different treatments and therapies?" There wasn't much research asking
people their opinions about services and treatments. I think it was ground
breaking because it really was designed by us."
(Alison
Faulkner 2.2009)
"The Strategies for Living research
project followed on from the
Knowing our own Minds survey by investigating
in greater depth the key issues raised by the survey, through
face-to-face interviews with 71 people." [source?]
How did the Strategies for Living program follow-on...?
"Our aim was to document and disseminate people's own ways and strategies
for managing mental distress, primarily through user-led research. The core
piece of work was the Strategies for Living report, but we also then
invited applications from service users to do their own research. I think
that was the most innovative and exciting part, because we were
giving people training in skills and understanding research. I think it had
a huge impact." (Alison Faulkner 2.2009)
In 1997 the National Lottery Charities Board made a grant to the Mental
Health Foundation for a three year programme of work led by service users,
to "document and disseminate people's strategies for living with mental
health problems".
(Newsletter 1)
May 1997 Steering group established with members from
UK Advocacy Network - the
Manic Depression Fellowship -
Depression Alliance -
African-Caribbean Users Forum -
Mind Link - and the
Scottish Users Network.
(Newsletter 1)
September 1997 Jim Green's report on consultations with users groups
in England, Wales, Scotland and Northern Irelend.
Jan Wallcraft's report on published and unpublished work on the
role of alternative and complementary therapies in mental health.
October 1997
First newsletter. Jan Wallcraft appointed researcher for the
strategies for living project.
"Since 1997 the Mental Health Foundation has played a key role in
supporting and promoting user/survivor-led research in the mental health
field across the UK through its Strategies for Living initiative." Phase
one of the initiative ran from 1997 to
2000 and phase two from 2000 to
2003. (
(Mental Health Foundation, November 2003))
"The Survivor Researcher Network began as part of the work of the
Strategies for Living project hosted by the Mental Health
Foundation
(confirm with Alison Faulkner) in the very late 1990s. S4L no longer
exists but the SRN continues to be supported by the MHF who provide a
room and travelling/subsistence expenses and administrative support."
(David Armes, email 1.8.2008) - See
2001 - website 29.9.2002: " Research
Support News Newsletter of the 'Research Support Network', part of the
'Strategies for Living' programme from the Mental Health Foundation. The
Research Support Network aims to encourage people with experience of mental
health problems to find out more about what helps them."
Website established July 2009 with this text: Survivor
Researcher Network (SRN) The SRN is an informal network of people who
have experience of mental health problems or emotional distress. They are
interested in sharing thier experiences as researchers in the mental health
field. Feel free to join if you are a service user or survivor doing
research. They meet up in London every quarter. Reasonable travel expenses
will be paid. Also, some of the SRN members have been involved with the
production of the book
This is Survivor Research ISBN 978 1 906254 14 8.
Survivor Researcher Network, c/o Mental Health Foundation, 9th Floor, Sea
Containers House, 20 Upper Ground, London, SE1 9QB.
Coverage of Organisation National
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March 1997
Veronica Dewan appointed by West Sussex Social Services to set
up a Users as Trainers' Project as a training project for people in
West Sussex who use mental health services. This became the
Capital Project Trust in
1998 (
website -
archive -
history -
contact details). CAPITAL
stands for "Clients and Professionals in Training and Learning".
In August 2005 it had just under 100 members, many of whom work as
volunteers
delivering service user focused training or are involved in consultancy and
research.
Clare Ockwell, one of
its founders, is an active member of the
Service Users History Group, as is its ex-Director,
Anne Beales.
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May 1997 "The North West Right to Refuse Electroshock Campaign was
formed following a packed public meeting organised by
Psychology Politics Resistance in May 1997 at
Manchester Town
Hall. The founding meeting heard members of
ECT Anonymous describe the
effects of this `treatment'"
(external source)
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Reclaim Bedlam?
Summer and Autumn 1997
Reclaim Bedlam campaign (protest against the
celebration of Royal
Bethlehem Hospital anniversary), eventually leading to formation of
Mad Pride, a group that organises demonstrations and
celebrations of 'mad
culture'. (On Our Own Terms
2003 Table
4) - but incorrectly given as 1999
750th anniversary celebrations of
Bethlem Hospital
These were publicised
in March (Probably earlier).
Pete Shaughnessy (Evening Standard Magazine
17.3.2000) "I was involved in the Maudsley at the time. They
came and talked to us, as an afterthought, and said we'll have a "Users'
Day" on
the third day. I thought that was really token, that we were
tacked
on at the end of this really naff event. And then they said we're having a
Thanksgiving Service at St Paul's, and I think that's probably when I
snapped. We called that a Commemoration, for the people who have died and
the sadness they've lived in."
Pete Shaughnessy and
colleagues in Southwark Mind countered the idea of "celebration" with that
of "commemoration" in what he later described as a "battle with the
Maudsley PR machine". "We spoke at Reclaim the Streets and political
events. We gatecrashed conferences... I know we pissed users of with our
style..".
A picket of the staff ball and following "Fun Day" (Family Spectacular) was
planned. However, when Pete heard that users were willing to cross the
picket line in order to run a stall at the Family Spectacular - "I lost my
nut, which meant I threatened to bring Reclaim the Streets down to smash up
their stall." The police were called and the pickets had to be called off.
Friday 21.6.1997 Staff Summer Ball at Bethlem
Saturday 22.6.1997
Family Spectacular "An open afternoon at Bethlem"
Sunday 23.6.1997 Proposed third day to be devoted to users? (see
above)
Saturday 5.7.1997 Gay Pride March and Festival on Clapham Common.
(See
Independent 6.5.2007). "A few survivors of the mental health
system said "we could do with a festival like this". And so a motley
collection of individuals got together and slowly started organising
themselves so as to put on events". -
source. See
Mad Pride 1999
"The first events were ... a rally and march from the Imperial War Museum
to the Maudsley in Camberwell; and a picket of the service at St Paul's,
which involved a minute's silence on the steps outside". (Pete Shaughnessy
17.3.2000)
"We had our first picnic at the
Imperial War Museum... Simon Hughes MP came and spoke. There
were features in the Big Issue and Nursing Times, and we were
afloat... Our
next event was to screw up the the thanksgiving service at St Paul's
Cathedral"
(Pete Shaughnessy
Mad Pride (2000) page 22)
Monday 21.7.1997 "Happy Birthday Bedlam?" The Big Issue
Wednesday 23.7.1997 "Two sides to every story" Nursing Times
24.8.1997
Southwark Mind AGM
Thursday 23.10.1997 Service of Thanksgiving at St Paul's
Cathedral 11am
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Sunday 31.8.1997 Although nothing appears to happened in the world
for 24 hours except the death of Diana Princess of Wales, in fact many
dependent people suffered neglect as staff watched television.
September 1997 Issue one of The Camden Bugle - Monthly Newsletter
of
Camden Mental Health Consortium
September 1997 Doing Disability Research, edited by
Colin Barnes and Geoff Mercer, published by The Disability Press, Leeds.
Available online. See chapter five
Psychiatric System Survivors and Emancipatory research: Issues, overlaps
and differences by
Peter Beresford and
Jan Wallcraft - (
offlinecopy)
October 1997
Strategies for Living Newsletter
Volume 1 Issue 1.
[Issue 2 January 1998 -
[Issue
