A Pageant of Survivor History

Mental patients in poetry, story and song from the 18th to 21st century

Followed by an open mike session for people to talk about their own experiences.

FEEL Organised jointly by F.E.E.L.
with the
Survivors History Group
and performed on
Friday 19.3.2010

at Kingsley Hall Powis Rd, London, E3 3HJ (map) - 6.30 - Doors open for 7pm start. - Download the original flyer

Do not clap or boo individual performers - We are performing together and you can let us know what you think at the end!

The audience gave the best performance

If viewing on the web, you are advised to first let the mudlarks drive you crazy - as they did us on the night.
When you are sufficiently insane, we will travel back to the eighteenth century



Tower Hamlets African and Caribbean Mental Health Organisation (THACMHO) was established in 1996. Its symbol is Tabono representing strength, confidence and perseverance.

Seeking to restore strength through history, THACMHO researched, wrote and published

Power Writers and the Struggle Against Slavery - Celebrating five African writers who came to the East End of London in the 18th century


Ukawsaw Gronniosaw was born a prince in Africa, somewhere near Lake Chad. - But he was a prince with a difference: He was considered foolish or insane.

Ukawsaw was sold into slavery, crossed the Atlantic, and became a domestic slave in New York. Eventually he was granted freedom.

Ukawsaw crossed the Atlantic again to England

Near here, in Petticoat Lane, Ukawsaw met Betty

Mr Whitefield received me very friendly, was heartily glad to see me, and directed me to a proper place to board and lodge in Petticoat Lane, till he could think of some way to settle me in, and paid for all my lodgings and expenses.

The morning after I came to my new lodging, as I was at breakfast with the gentlewoman of the house, I heard the noise of some looms over our heads: I enquired what it was; she told me that the person was weaving silk. I expressed a great desire to see it...

... as soon as we entered the room, the person that was weaving looked about, and smiled upon us, and I loved her from that moment.

She asked many questions and I in return talked a great deal to her.

I found that she was a member of Mr Allen's Meeting, and I began to entertain a good opinion of her, though I was almost afraid to indulge this inclination, lest she should prove like all he rest that I met with at Portsmouth etc and which had almost given me a dislike of all white women. But after a short acquaintance I had the happiness to find she was quite different, and quite sincere, and I was not without hope that she entertained some esteem for me.

Philip Morgan as Ukawsaw Gronniosaw

Ukawsaw Gronniosaw went to Holland

My lady proposed my marrying her maid; she was an agreeable young woman, had saved a great deal of money, but I could not fancy her, though she was willing to accept of me.

I told her my inclinations were engaged in England, and I could think of no other person.

On my return home, I found my Betty disengaged. She had refused several offers in my absence, and told her sister that, she thought, if ever she married I was to be her husband.

Betty married Ukawsaw and, with their children, moved to Essex

My dear wife and I were now both unemployed, we could get nothing to do.

The winter proved remarkably severe, and we were reduced to the greatest distress... our last bit of bread was gone... to see my dear wife and children in want pierced me to the heart - I now blamed myself for bringing her from London, as doubtless had we continued there we might have found friends to keep us from starving...

The snow was at this season remarkably deep...

I resolved to make my case know to a gentleman's gardener that lived near us, and entreat him to employ me... I endeavoured all I could to prevail on him to set me to work, but to no purpose: he assured me it was not in his power.

When I was about to leave him, he asked me if I would accept some carrots? ... He gave me four, they were very large and fine - We had nothing to make fire with, so consequently we could not boil them: But was glad to have them to eat raw. Our youngest child was then an infant, so that my wife was obliged to chew it, and feed her in that manner for several days.

We allowed ourselves but one every day, least they should not last 'till we could get some other supply.



The nineteenth century confined more and more people in lunatic asylums. One of these was John Clare, the rural poet who continued to write poetry from the asylum for the rest of his life.

His sonnet The Nightingale was written on June 12th 1844 in the Asylum at Northampton where Clare was confined from 1842 to his death on May 20th 1864.

A spellbound audience listens to Sarah
Barrett perform John Clare's The Nightingale

This is the month the Nightingale, clod-brown,
Is heard among the woodland shady boughs;
This is the time when, in the vale, grass-grown,
The maiden hears at eve her lover's vows,
What time the blue mist, round the patient cows,
Dim rises from the grass, and half conceals
Their dappled hides. I hear the nightingale,
That from the little blackthorn spinney steals
To the old hazel hedge that skirts the vale,
And still unseen, sings sweet. The ploughman feels
The thrilling music as he goes along,
And imitates and listens, - while the fields
Lose all their paths in dusk, to lead him wrong,
Still sings the Nightingale her soft melodious song.



Freda Mew was confined in an asylum from 1899, when she was only nineteen, until her death in 1958.

Her sister Charlotte Mew was scared that her own mental instability would be diagnosed as insanity.

Ken, in this poem by Charlotte, has similarities with Freda, as she is described in her medical case notes. Magazine editors refused to publish the poem - They thought people like Ken should be in asylums.

Myra Garratt as Charlotte Mew

When first I came upon him there
Suddenly, on the half-lit stair,
I think I hardly found a trace
Of likeness to a human face
In his. And I said then
If in His image God made men,
Some other must have made poor Ken -
But for his eyes which looked at you
As two red, wounded stars might do.
He scarcely spoke, you scarcely heard,
His voice broke off in little jars
To tears sometimes. An uncouth bird
He seemed as he ploughed up the street,
Groping, with knarred, high-lifted feet
And arms thrust out as if to beat
Always against a threat of bars.

And oftener than not there'd be
A child just higher than his knee
Trotting beside him. Through his dim
Long twilight this, at least, shone clear,
That all the children and the deer,
Whom every day he went to see
Out in the park, belonged to him.

"God help the folk that next him sits
He fidgets so, with his poor wits."
The neighbours said on Sunday nights
When he would go to Church to "see the lights!"

... in that red brick barn upon the hill
I wonder - can one own the deer,
And does one walk with children still
As one did here -
Do roses grow
Beneath those twenty windows in a row -
And if some night
When you have not seen any light
They cannot move you from your chair
What happens there?

I do not know.
So, when they took
Ken to that place, I did not look
After he called and turned on me
His eyes. These I shall see -



From the asylums we hear the voices of collective action.

Patients found strength in mutual support.

The Royal Albert Institution for the Feeble-minded of the Northern Counties

18.7.1924

This statement is written by a patient and signed by patients.

On July 18th 1924 Patient James Ollier reported to the Chief Attendant the bruise of patient William Dugdale on hip (penus) which Dugdale had said Mr Hully had done it with kicking him.

The undersigned patients were present when the Chief Attendant replied saying he did not believe it. Mr Hully would not do such a thing.

Also informed him to mind his own business.

J. Ollier
J. Holmes
A. Batty
G. Hilton
J. Morris
R. Longmore

In January 1955 Peter Whitehead was in solitary confinement at Rampton top security hospital

"I decided I was being wrongfully shut away, because I knew I wasn't mentally defective, and ... I was not violent. I knew that I must go on believing this, and go on hoping that one day I would be set free. No matter how long I was imprisoned in Rampton, I was determined never to give up."

Peter advised other patients to

"Write letters. Get people outside interested in you. Tell them you've been wrongly shut away. If you stay quiet, nobody will lift a finger to help you, however long you stay here"

Working through the National Council for Civil Liberties, large numbers of patients, including Peter, won their liberty in the 1950s.



In the 1960s this building, Kingsley Hall, was an alternative asylum.

Mary Barnes lived here from 1965 to 1970. In the course of her treatment she came very close to death. Through her painting and her love, Mary found inner sources of strength, and restored her life. An ideal asylum, she thought, should be a place of refuge and creativity.

I want in such a community as ours to see real freedom and respect towards different ways of life.

I would like then, for Noel, a Meditation room with symbols of the Buddhist way of life, decorated according to Noel's taste.

What we believe in our minds affects our bodies, and so for Noel and others, a vegetarian diet.

Joe is Jewish. For him, the Passover seder, the ritualistic telling of the exodus from Egypt, is an expression of his being.

I am Christian and have been mad.

My madness uncovered more clearly and revealed the faith within me.

Going through madness is a purification, it brings me nearer to God, to myself, helps me to a more conscious awareness of God, to a fuller participation in the sight of God.

I desire facilities for 'going in' to further purify my remaining madness to holiness, to wholeness.

That's the sort of place I want, something sacred, full of love.



26.7.1971 "Petition for the Redress of Grievances put forward by the patients in Hartwood Hospital, Shotts Lanarkshire". Scotland

"The signatories to the petition are the Foundation and Permanent Members of SUMP The Scottish Union of Mental Patients"

SUMP was first mooted to Tommie Ritchie by another patient, Archie Meek, aged 91:

"What are we old men to do if you ever leave us? We are divided from one another. Start a union before you go - For divided we fall"



London 7.4.1973: A packed meeting of one hundred people founded The Mental Patients Union. By 1974 there were unions inside and outside of hospitals up and down the country. Two of the founding member were Tommie Ritchie and Eric Irwin

We proclaim the dignity of society's so-called mental patients

Mental patients in our society are treated as people with no human rights.

We are stigmatised, and our accounts of what happens to us in mental hospitals and outside are taken as symptoms of an 'illness'.

Most of us are never even given the opportunity to speak about what happens in mental hospitals, as we are incarcerated there and subjected to 'treatments' which destroy our memories, confuse our speech and co-ordination, destroy our incentive and intimidate us.

Our first intent in forming ourselves into a union is to fight against the 'conspiracy of deafness' that confronts us.


Friday 6.5.1974 4.30pm First meeting of Hackney Hospital MPU

"Alan Hartman explained what kind of things the mental patients union does. Refusing treatment, cruelty to patients, clothes grants, fighting against being discriminated against in jobs..."

"Resolved that a branch of the Mental Patients Union be formed in Hackney Hospital... The meeting was adjourned after the senior nursing officer attempted to break it up."

July 1974: Hackney Hospital Mental Patients Union won the right to meet



When Eric Irwin died, Mike Lawson wrote a poem in tribute. The images in these extracts recall the history of a movement.

Eric -

I have known you since the old days and the Paddington Day Hospital.

I remember then the first meeting of MPU

In those days everything was possible.
The handbills were given out, the fire was lit.
Some of us will always carry on that fight.

Prince of Wales and Kentish Town squat

The head was put into a spider web

Brian and Liz and political passion
To talk of psychiatric oppression

The flame was lit and its grown

COPE was born - Acklam Road - it felt like home.

Some books and lives later COPE to PROMPT
Singing songs at the Metropolitan.

ECT memories make shadows from time
We turned the ridiculous into sublime

Thank you a great teacher and a friend,
You helped me with your inspiration
And PROMPT became CAPO with deliberation.
As we all moved along

Eric Irwin was born in Belfast in 1924.

During his life he was in seventeen psychiatric institutions in Ireland, Australia and England.

Eric experienced ECT when it caused epileptic fits and broke people's backs, and his own back was damaged.

Eric took part in the campaign to save the Paddington Day Hospital.

With Liz Durkin, Lesley Mitchell and Brian Douieb, he wrote The Case for a Mental Patients Union. He was also part of the West London collective COPE (Community Organisation for Psychiatric Emergencies). MPU had its first HQ in Prince of Wales Road, Kentish Town and COPE had a base in Acklam Road, North Kensington.

Eric's involvement continued through PROMPT, a group that ran a crisis phoneline and published books on the many issues of psychiatry, and, through a petition to Parliament, campaigned against ECT.

In 1985 PROMPT changed its name to CAPO: - Campaign Against Psychiatric Oppression. PROMPT and CAPO both used the MPU symbol: the head caught in a spider's web.

In 1985 English users groups like CAPO were not invited to the World Mental Health Conference in Brighton. Eric Irwin, Barry Blazeby and Frank Bangay, attended, uninvited, joining in the international alliance of patients who took over part of the conference and produced a manifesto.

Music and poetry gigs were organised by Frank Bangay to raise money for PROMPT and CAPO. The first few gigs took place at the Metropolitan, a public house in Farringdon. They then moved to the Troubadour Coffee House in Earls Court.



In the Summer of 1981 Matthew O'Hara Committee News was hand produced by patients.

As well as articles on deaths in custody - PROMPT's Second National Antipsychiatry Conference - and Janet Cresswell in Broadmoor - it included this poem by David Kessel, a founder of Hackney Mental Patient's Association

David Kessel performs Hungering

Hungering

Whilst I awkwardly roll a fag
a robin sings from a holly tree.

It is we who fence ourselves in.
Like foxes we hunger underground.

The rowan thrives in fierce winds.
The wind brings it rain, bears its leaves and fruit.

I pick a blackberry and find a worm.
I leave the worm to eat the flesh
so the pips may lie naked on the ground.

I turn my female god naturally
into the beetle in my hand.
Then with love I can watch it.
I'll go on making such magic till I die.

On harsh and bitter ground
nettles grow abundantly tall.
Cows make sweet milk from them.

In a sacred wood I dream
of life's conception.

This hawk in a tree hungers for life.
This jet-fighter for death.

If we were really like sheep
we would not kill one another
nor slaughter other animals.

I listen to an owl's ironic hooting.
It knows well its strength
but kills only what it needs.
Thus I will survive life's harshest winter.

To be a sea-trout seeking a mate
at the stream's head

I would live with her as wagtails
independently do by the stream.

The rain is falling into our valley of life and death,
falling on mankind's disintegration of cruelty.

The path becomes a muddy stream.
This is the way I see a woman I love
moving in her freedom with the dark purity of the earth.
Sometimes I feel like the bare sky
longing for the earth.

I have climbed this hill to learn to care.



Hidden from view At the back of the hall our sound technician,
Cristina Garcia, worked tirelessly to make sure we could all hear. 
Sue Dean, Jo Panter and Caroline Fenech from HUSH (Hidden Universe of
Self Harm) took care of the food.
At the back of the hall, our sound technician, Cristina Garcia, worked tirelessly to make sure we could all hear - and Sue Dean, Jo Panter and Caroline Fenech from HUSH (Hidden Universe of Self Harm) took care of the food.


I now introduce Peter Campbell, the first secretary of Survivors Speak Out

Survivors Speak Out was founded early in 1986. For more than ten years it was an important networking organisation for the growing survivor movement. It owes its foundation to concerns that no UK service were represented at the important World Mental Health Federation conference in Brighton in the summer of 1985. Some money was found to enable two meetings of survivors and their allies to take place and at the second of these, at Minstead Lodge in the New Forest, the organisation was established and its name chosen.

The main objectives of the organisation in the beginning was to produce a newsletter and, most importantly, to organise a national conference where survivor activists could come together. This eventually took place over a weekend at Edale Youth Hostel in the Peak District in the autumn of 1987. The event was important as it brought people from different parts of the UK together for the first time. About 100 people attended, including a small number of allies. Not all the attendees were members of Survivors Speak Out. A Charter of Needs and Demands was unanimously agreed and a public statement opposing Community Treatment Orders was also agreed.

In the months following the Edale Conference it became clear that Survivors Speak Out did not have the resources to adopt a regional structure. Apart from anything else, Mindlink was fast developing, building on Mind's regional structure. Nevertheless, Survivors Speak Out played an important part in spreading the word about the possibilities of "self-advocacy" by sending speakers to local events where service users were discussing action and by producing and selling A Self-Advocacy Action Pack with practical advice about how to set up and run a local action group.

In addition to the Self-Advocacy Action Pack, Survivors Speak Out produced three other publications - Eating Distress - Stopovers on my Journey Home From Mars (a comparison of service user/survivor action in the USA, United Kingdom and Europe - Self Harm: Perspectives From Personal Experience. The latter was the most successful publication, proving to be a pioneering work that is still in demand.

This is a poem I wrote for Survivors Speak Out:

Peter Campbell

Peter Campbell beats the rhythm for the
mental marching band

The Mental Marching Band

You'd better wet your whistles
For the Mental Marching Band
For we're making a wee comeback
And its spreading through the land.
And we'd laugh you to distraction
If we thought you'd understand
About the Mental Marching Band.

There's Danny Ogenkenyu
On the bagpipes by the way
And when he's took his Lithium
Sweet Jesus can he play.
You can denigrate the madness
The song won't fade away
From the Mental Marching Band.

We'll all be out and running
When the storm breaks.
Down the House of Commons
Wi' our fruitcake.
You'll have to take your medicine then
Just for he music's sake
And the Mental Marching Band.

We'll not be taking prisoners
Under the blood red skies.
We've had too much confinement
In our own lives.
We're getting our own World War out
That everyone survives.
Thanks to the Mental Marching Band.
Let's hear it.



David Kessel's Hackney Mental Patient's Association was followed by Hackney Mental Health Action Group and (in 1987) the Hackney Union of Mental Patients.

In this picture, John Considine, Joan Hughes, Tony O'Donnel, and David Kessel prepare to leave the Old Fire Station in Stoke Newington for an expedition to Walthamstow Marshes.

Other HUMP members included John Roberts - John Considine - Pat Walters - Harold Leeson - and Brendan and Martin Maher .


In the early 1990s the life of old Hackney Hospital, in Homerton High Street, was drawing to a close and the emptying buildings became the site of a creative outburst of activity.

In 1992, Paul Monks, a local artist, used an abandoned ward at Hackney Hospital as his studio. Patients from the psychiatric unit visited and, with limited funding, an open studio was created. Out of this Core Arts was born in 1994.

In March 1994 Hackney Patients' Council was founded. At this time, there were only two other patients councils in the country known to the group. Hackney Patients' Council still represents patients in the new Homerton Hospital.

One of the artistes who now works through Core Arts is the Gospel Singer, Sophie Mirrell, who will now sing

Sophie Mirrell

Sophie Miirrel sings Loneliness is not the will
of God!

Loneliness is not the will of God!

~~~~

It will not - Go without your decision

Go into the church to make it vanish in your mind

Read sometime the word of life

To give your spirit peace

Loneliness is not the will of God!

Yeah Yeah Yeah Yeah

It will not - Go without your decision

Remind God that he says

It's not good to live alone

He will make for him a helper

Loneliness is not the will of God!

Yeah Yeah Yeah Yeah

It will not - Go without your decision

Don't think bad about yourself

Appreciate your life

God we need your grace - To be happy

Loneliness is not the will of God!

Yeah Yeah Yeah Yeah

It will not - Go without your decision

Loneliness - Loneliness - Loneliness - Loneliness - Loneliness - Loneliness - Loneliness - Loneliness - Loneliness - -

SIMBA: let the tiger
roar

SIMBA: let the tiger
roar

SIMBA: let the tiger
roar

SIMBA: let the tiger
roar

Autumn 1998 Mysterious notices all around the Maudsley Hospital warn that the tiger is coming.

17.12.1998 ... First official meeting of SIMBA (Share In Maudsley Black Action)

The tiger continued roaring:

23.3.2000 SIMBA performed at the third Big Alternative Conference organised by Strategies for Living

Asked to do a presentation, Premila Trivedi thought of "transparencies, statistics and charts", but the group thought it would be "so much more powerful to do it through prose and poetry"

Mad Pride developed from protests organised to reclaim the cultural history of the mad. It's "first ever gig" was held at the Foundry in Old Street, Shoreditch.
Frank Bangay read from Naked Songs and Rhythms of Hope, his illustrated collection of poems from 1974 to 1999.

Franks poems are annotated and the book as a whole is one our richest sources for the history of our movement.

Since 1999 Frank has continued to write and to perform. He has worked with Sophie Mirrell and his poems have been recorded in a series of CDs produced at Core Arts

Frank will now perform a poem about survival that he wrote in 1992 and read on a video he made as part of the exhibition "Care and Control" on the closure of Hackney Hospital. The poem is called

A Proud Rhythm

Frank Bangay

When a wind of chaos
Blows through our lives
It pulls meaning apart
In the aftermath
We sit and wonder
How to mend a broken heart

A saddened chuckle echoes through the darkness
It's a survival instinct that we know
And we wonder how did we lose sight of our worldview
The ideology we hold so close

Somehow our dreams slipped through shaking hands
How do we fit all the pieces together again
Reaching out for someone
Something special to hold on to

A madman tries to compose himself
So that he can fit in once more with the crowd.
He tries hard to make the mask fit
But it's not easy keeping a stiff upper lip
When there is so much to express.
So much confusion and bewilderment
At being alone in this hostile world.

When the medication starts taking control
Things can seem a little strange
Deep in our hearts we know
Thing's won't be the same again.

A mad person tries to be at one with the crowd
But you can't hide fearful eyes
The years are being singled out.
And you can't hide the worrylines
That run across your face
As you take your place in the competitive day.

But memories haunt in the deep of the night
Leaving a longing
To open up and cry

And to understand the experiences
That changed the meaning of our lives.
But a proud rhythm beats inside,
A proud rhythm beats inside,
A proud rhythm will keep beating inside,
A proud rhythm will keep beating inside,
Yes we will be strong this time.

Frank Bangay beats a proud rhythm inside us



Performers and organisers will gather at the front to say thank you to the audience in the usual way!

Performers thank the audience



Mark Barnes

WE SURVIVE AND FLOURISH WHEN WE
RECOVER OUR OWN IDENTITIES FROM HISTORY.

Tower Hamlets African and Caribbean Mental Health Organisation (THACMHO)
c/o Social Action for Health, The Brady Centre, 192 Hanbury Street, London, E1 5HU
website: http://thacmho.wetpaint.com


Survivors History Group
177 Glenarm Road, London, E50NB
website: http://studymore.org.uk


F.E.E.L. - Friends of East End Loonies
Meets LARC Centre, 62 Fieldgate Street, London, E1 1ES on the third Monday of every month at 6.30 pm.
Contact David: 020 7790 0269 or Myra: 020 7780 9038


Asylum - the magazine for democratic psychiatry - Normally £3.50 - Tonight £2.50. The mouthpiece of mental patients for 25 years. website: http://www.pccs-books.co.uk/


























Survivors

The Mudlarks drove us wild